What's Making News

November 14, 2016 - 3:36pm

In the next issue of the Dystonia Canada Report, look for an information-packed update on the progress researchers are making on de-mystifying TorsinA, a protein known to cause dystonia when it becomes abnormal due to genetic mutation. TorsinA is infamous for its role in causing DYT1 early onset dystonia but is also suspected to play a role in additional types of dystonia. The past several months have produced an explosion of groundbreaking new published data on TorsinA—including some surprises.

November 4, 2016 - 2:33pm

Giving Tuesday

Today is special. Today is a gift.

June 24, 2016 - 12:44pm

Click here to review all of the latest news, upcoming patient events, and research updates in the dystonia community.

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June 23, 2016 - 3:23pm

Don't Miss This Special Meeting all about Dystonia!

 
August 12 - 14, 2016
Holiday Inn Mart Plaza - Chicago
 
Topics to be addressed by 20+ speakers includ dystonia treatments, including deep brain stimulation, alternative and complimentary therapies, dystonia research update, and break-out sessions on coping, depression and anxiety, family dynamics, educational rights, pros and conds of adding a
May 16, 2016 - 2:24pm

In May 2016, DMRF Founders Frances and Samuel Beltzberg were recognized by Simon Fraser University with the 2016 President's Distinguished Community Leadership Award.

In addition to founding the Dystonia Medical Research Foundation 40 years ago, the Belzberg's have demonstrated an outstanding commitment to education, human rights, health care and the arts. Their shared vision and lifetime of service, community engagement and philanthropy has profoundly improved the overall well-being of community-oriented organizations that make a difference both locally and internationally.