Chuck's Run for Dystonia - 5 km. Run/Walk

The Dystonia Medical Research Foundation Canada invites you to participate in Chuck's Run for Dystonia 5Km Run/Walk at High Park. 



In 2012 the DMRF Canada annual Freedom to Move for Dystonia 5 km Walk/Run was named “Chuck’s Run for Dystonia” after Charles (Chuck) Saundercook who was diagnosed in 1972 with generalized dystonia at the age of 12. In 1978 Chuck became one of the first Canadians to receive deep brain stimulation. He improved with the procedure but developed pneumonia and in his weakened state, died at age 16. In his final chapter, Chuck donated his body and brain to help others in furthering dystonia research. Since then the entire Saundercook family have been enduring supporters of dystonia awareness and research. 

For Volunteers:

Chuck’s Run will be held on Sunday, June 5th at High Park.

2016 Chuck's Run Volunteer Shifts and Descriptions

Get Volunteer Hours! All volunteers will receive a signed letter from the Executive Director of the Dystonia Medical Research Foundation that confirms their volunteer hours. 

If you are interested in volunteering, please email Loretta Jacques at

Shift 1:

8:30 am – 12:00 pm

Name of Role

Positions Required



Entrance Greeters


Required at the High Park entrance to welcome greeters


Registration Greeters


Required at the Race route to steer people to registration




Registration - includes Day of Registration and Pre-Registration


Registration - Timing


Lead to assist with timing/liaison


Set up


Setting up the day of the event


Water Station 1 & 2


Manning the water station along the booth




Taking pictures along the route and posting to social media






Shift 2:

9:30 am – 1:00 pm

Name of Role

Positions Required



Course Guides/Spirit Squad

Minimum 5 – ideally 20

Steering walkers and runners the right way - making sure they know where they are supposed to go, acting as cheering squad along the route.


Tear Down/


Required at the Race route to steer people to registration

Click here for more details about Chucks Run 2016