Ways to Help

Our mission is to advance research for more research and
ultimately a cure for Dystonia. Click here to find out how
you can support dystonia research!

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Dystonia Report

Real Patients. Real Answers. The Dystonia Survey Report is
Available now. Click here to see the results.

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Join a Support Group

The DMRF Canada Support Group Network provides an
opportunity for people with dystonia to come together to
support one another, raise awareness, and fund-raise. Click
here to find a support group near you!

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Toronto Zoo Walk

Join the Toronto Zoo Walk, a family-friendly community
event, to raise awareness of dystonia and to support the
work of the DMRF Canada. Click here for more details and to
register!

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Awareness Month

Join DMRF Canada to create awareness through the "Dystonia
Moves Me" awareness campaign, taking place during the month
of September 2017. Click here to find out how you can get
involved.

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What's Making News

June 14, 2010 - 1:09pm

Posted By RACHEL PUNCH, THE SUDBURY STAR: Mother of three Corinne Fewster-Gagne knew something was wrong with her infant son when he was about three-months-old."If he was awake, he was crying," Fewster-Gagne said. His fists and arms were clenched tight and weren't moving. "If I put him under a mobile he would just lay there all stiff. I knew something was wrong," Fewster-Gagne said.

November 6, 2009 - 9:28am

Guy Dixon From Saturday's Globe and Mail

For many years, Liona Boyd had something distressing happening to her hand, specifically to her right middle finger, and it was only getting worse.

July 21, 2009 - 9:43am

Wired Magazine - Brian Raferty - The rules changed all the time—sometimes day to day, sometimes hour to hour—and whenever he tried to recite them, people thought, "This guy is nuts."

The rules dictated when and where Scott Adams, the chief engineer of the Dilbert comic empire, was allowed to speak. He could neither control them nor predict exactly when they'd go into effect.

April 30, 2009 - 2:02pm

The Doctors, CBS  Living with Dystonia
Imagine having constant muscle spasms and not being able to stop your body from shaking uncontrollably. Alex, 27, has lived with this debilitating feeling since she was diagnosed with dystonia in 2007.

April 21, 2009 - 11:11am

By Hoda Kotb Correspondent NBC News

Imagine being a high-spirited 12-year-old boy and discovering that your body wasn't working the way it's supposed to. Watch the full segment here.

The Dystonia Medical Research Foundation (DMRF) Canada is the only organization that is dedicated to supporting the 50,000 patients in Canada that suffer from dystonia, a neurological movement disorder that affects the nervous system. Abnormal signaling from the brain causes muscles to tighten and twist involuntarily. There are several forms of dystonia, and dystonia may be a symptom of many diseases and conditions.

For over 40 years, the DMRF Canada has fought for those impacted by dystonia, working toward better treatments and a cure; funding research, providing advocacy and support, and raising awareness of this devastating disorder.

Join us, and be a part of the global effort to find a cure.

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