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In the past 30+ years, the Stanford Patient Education Research Center has developed, tested, and evaluated self-management programs for people with chronic health problems.
In the next issue of the Dystonia Canada Report, look for an information-packed update on the progress researchers are making on de-mystifying TorsinA, a protein known to cause dystonia when it becomes abnormal due to genetic mutation. TorsinA is infamous for its role in causing DYT1 early onset dystonia but is also suspected to play a role in additional types of dystonia. The past several months have produced an explosion of groundbreaking new published data on TorsinA—including some surprises.