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Prime Minister Justin Trudeau was present on December 16, 2016 at the Montreal Neurological Institute and Hospital for the announcement of the donation of $20 million by the Larry and Judy Tanenbaum family. This gift, which McGill University calls “transformative”, will help to establish the Tanenbaum Open Science Institute, to facilitate the sharing of neuroscience findings worldwide to accelerate the discovery of leading edge therapeutics to treat neurological conditions.
In the past 30+ years, the Stanford Patient Education Research Center has developed, tested, and evaluated self-management programs for people with chronic health problems.
In the next issue of the Dystonia Canada Report, look for an information-packed update on the progress researchers are making on de-mystifying TorsinA, a protein known to cause dystonia when it becomes abnormal due to genetic mutation. TorsinA is infamous for its role in causing DYT1 early onset dystonia but is also suspected to play a role in additional types of dystonia. The past several months have produced an explosion of groundbreaking new published data on TorsinA—including some surprises.