What's Making News

June 1, 2016 - 8:37pm

TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.

February 10, 2017 - 1:47pm

Chicken Soup

In honor of Rare Disease Day, taking place on February 28, 2017, the DMRF Canada is excited  to announce our Chicken Soup for the Soul – Dystonia Edition writing contest. 

January 20, 2017 - 10:40am

Prime Minister Justin Trudeau was present on December 16, 2016 at the Montreal Neurological Institute and Hospital  for the announcement of the donation of $20 million by the Larry and Judy Tanenbaum family. This gift, which McGill University calls “transformative”,  will help to establish the Tanenbaum Open Science Institute, to facilitate the sharing of neuroscience findings worldwide to accelerate the discovery of leading edge therapeutics to treat neurological conditions.

November 24, 2016 - 1:12pm

Standford Medicine

In the past 30+ years, the Stanford Patient Education Research Center has developed, tested, and evaluated self-management programs for people with chronic health problems.

November 14, 2016 - 3:36pm

In the next issue of the Dystonia Canada Report, look for an information-packed update on the progress researchers are making on de-mystifying TorsinA, a protein known to cause dystonia when it becomes abnormal due to genetic mutation. TorsinA is infamous for its role in causing DYT1 early onset dystonia but is also suspected to play a role in additional types of dystonia. The past several months have produced an explosion of groundbreaking new published data on TorsinA—including some surprises.