In May 2016, DMRF Founders Frances and Samuel Beltzberg were recognized by Simon Fraser University with the 2016 President's Distinguished Community Leadership Award.
In addition to founding the Dystonia Medical Research Foundation 40 years ago, the Belzberg's have demonstrated an outstanding commitment to education, human rights, health care and the arts. Their shared vision and lifetime of service, community engagement and philanthropy has profoundly improved the overall well-being of community-oriented organizations that make a difference both locally and internationally.
The Dystonia Coalition is conducting a study to develop the best way to measure the symptoms and impact of blepharospasm.
This study is being conducted at Toronto Western Hospital by Dr. Susan Fox
For details on the study and eligibility criteria please click poster
Toronto Star - August 4, 2016 - Kerry Gillespie. Ian Kent who has dystonia, has been competitive from the moment he and his older brother started playing in the basement as kids in the 1970s through to more recent years when, despite his disability, he continued to beat everyone in Nova Scotia, including his adult sons, in able-bodied table tennis. More