What's Making News

June 1, 2016 - 8:52pm

TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.

June 1, 2016 - 8:37pm

TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.

December 4, 2017 - 9:43am

November 30, 2017. CBC Radio One, "Q"

Tom Power of CBC Radio One show the Q sat down with Shania Twain, Canadian country music legend, to talk about her life and her dystonia. You can listen to the interview here. Its so important to have advocates like Shania out there, sharing her story about her life with dyphonia, a form of dystonia. 

February 10, 2017 - 1:47pm

Chicken Soup

In honor of Rare Disease Day, taking place on February 28, 2017, the DMRF Canada is excited  to announce our Chicken Soup for the Soul – Dystonia Edition writing contest.