The DMRF Canada is thrilled that we have officially become a partner of the Global Dystonia Registry. The goal of the Global Dystonia Registry is to support future dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia. Although the focal dystonias have many different manifestations, most experts believe they share a common pathogenesis or mechanism that causes the disorder. The common causes may be a similar gene defect, similar lifetime experiences, or both. Collecting information from different patient populations may help us identify the common features that they may share.
Register today - and help to guide future dystonia research. your responses will help us better understand the dystonia experience and help guide future directions in research. your responses will remain confidential. Your participation is completely voluntary and the parameters of each study will be defined for you should you decide to be involved.