Every other month DMRF Canada publishes Going Forward; our bi-monthly e-newsletter.
What's Making News
We’re thrilled to introduce the 2019 Chuck’s Run Ambassador, Sarah-Anne.
Last year, Sarah-Anne and her family participated in Chuck’s Run, and it was a pivotal point in Sarah’s journey with dystonia. “ To see the community come together – to know that so many people there – strangers who I didn’t know - had once been alone like me - was a feeling like no other.”
The Jackson Mooney Dystonia Patient Grant was established to provide financial assistance of up to $5,000.00 for Canadian residents who are living with dystonia, in financial need and committed to enhancing their current situation through furthering their education. To qualify for this grant, an individual must:
• Have been diagnosed by a medical professional as having dystonia;
• Be a Canadian citizen or a Permanent Resident with Canada as their primary home;
November 2018: The DMRF Canada Board of Directors is pleased and proud to announce the launch of a new grant intended to fund research that could lead to better clinical treatments for dystonia patients. "DMRF Canada is committed to supporting the highest quality dystonia research in Canada," said Stefanie Ince, Executive Director.
This is the second research investment that has been announced this fall, following the launch of a two year Clinical Fellowship which was launched in October 2018.
Toronto Western General Hospital is conducting a clinical research study to test a new drug for Cervical Dystonia (abnormal spasms in the neck).
The drug is currently approved for use in the USA and Canada for treating epilepsy. The purpose of this study is to test the safety and benefit in treating the symptoms of cervical dystonia.
All participants receive the active drug.
To participate you must:
“I am thrilled that the DMRF Canada gave me the opportunity to participate in reviewing this guidebook. As a grade 12 student living with Generalized Dystonia, I can relevantly connect many aspects of this information back to my own school experience. The one thing that I wish I had realized sooner in my journey is that when you truly accept your diagnosis on a personal level, every other aspect of living with dystonia becomes easier to handle.” - Sarah Anderson, Teen Ambassador for DMRF Canada*.