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“I am thrilled that the DMRF Canada gave me the opportunity to participate in reviewing this guidebook. As a grade 12 student living with Generalized Dystonia, I can relevantly connect many aspects of this information back to my own school experience. The one thing that I wish I had realized sooner in my journey is that when you truly accept your diagnosis on a personal level, every other aspect of living with dystonia becomes easier to handle.” - Sarah Anderson, Teen Ambassador for DMRF Canada*.

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Cervical dystonia, also known as spasmodic torticollis, is a focal dystonia characterized by neck muscles contracting involuntarily, causing abnormal movements and awkward posture of the head and neck. The movements may be sustained (“tonic”), jerky (“clonic”), or a combination of both.

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TORONTO, ON – August 30, 2018 – The Dystonia Medical Research Foundation (DMRF) Canada is pleased to announce that September is dystonia awareness month in Canada.

In August 2018, DMRF Canada Clinical Fellow Karlo Lizarraga launched his first 'Toxin Club', for all of the Movement Disorder Fellows at Toronto Western Hospital. These meetings will serve as a place for Clinical Fellows to gather, share case information and discuss best practices in Clinical Treatments. Executive Director, Stefanie Ince, was on hand to listen, learn, and ask questions about the patient experience at Toronto Western.

DMRF Canada, in consultation with other organizations that are involved with Neurological Health Charities Canada (NHCC), has made five key recommendations in its brief to the Finance Committee for its 2019 pre-budget consultations.