Every other month DMRF Canada publishes Going Forward; our bi-monthly e-newsletter.
What's Making News
November 2018: The DMRF Canada Board of Directors is pleased and proud to announce the launch of a new grant intended to fund research that could lead to better clinical treatments for dystonia patients. "DMRF Canada is committed to supporting the highest quality dystonia research in Canada," said Stefanie Ince, Executive Director.
This is the second research investment that has been announced this fall, following the launch of a two year Clinical Fellowship which was launched in October 2018.
Toronto Western General Hospital is conducting a clinical research study to test a new drug for Cervical Dystonia (abnormal spasms in the neck).
The drug is currently approved for use in the USA and Canada for treating epilepsy. The purpose of this study is to test the safety and benefit in treating the symptoms of cervical dystonia.
All participants receive the active drug.
To participate you must:
“I am thrilled that the DMRF Canada gave me the opportunity to participate in reviewing this guidebook. As a grade 12 student living with Generalized Dystonia, I can relevantly connect many aspects of this information back to my own school experience. The one thing that I wish I had realized sooner in my journey is that when you truly accept your diagnosis on a personal level, every other aspect of living with dystonia becomes easier to handle.” - Sarah Anderson, Teen Ambassador for DMRF Canada*.
Mike Stroh, friend of DMRF Canada and the Founder of Starts with Me, has published a Self Care and Self Awareness Guide:
Everyday practices to improve wellbeing, promote resilience, and nurture self compassion.
Click on the link below to download the Guide Today.
DMRF Canada is pleased to announce we are accepting applications for a two-year clinical and research fellowship to support the training of exceptionally qualified physicians in preparation for their clinical career in movement disorders with a focus on dystonia and a special competence in use of botulinum toxins.