DMRF Canada was thrilled with the results of our recent 2019 neurotoxin survey. We had close to 300 responses from individuals from all over the country.

A very sincere thank you to anyone who took the time to answer this survey.  This information will be used by DMRF Canada to help to improve the dystonia patient experience, and we appreciate your honesty and feedback. 

Congratulations to the following Grand Prize Winners. These lucky individuals will receive a $500 gift card from VISA:

Tracy H from Dresden, ON

Sarah A from Winnipeg, MB

Please note that there is an individual(s) who are posing as DMRF Canada staff members using email names. This individual is asking others for their personal details including phone number and email. Please note that this is not a legitimate request from DMRF Canada. Please check for legitimacy of email by the DMRF Canada domain name @dystoniacanada.org

We are thrilled to be joining the Greater Vancouver Area Dystonia Support Group and others from the dystonia community once again at this years 5K Scotiabank Charity Challenge taking place on Sunday, June 23, 2019.  

Save The Date: Chuck’s Run, Walk and Wheel 5KM for Dystonia is a fun, family-friendly event, hosted at High Park, Toronto on Sunday, June 2, 2019, to raise awareness and funds for dystonia, a neurological movement disorder. 

In February, the DMRF held our annual research meeting in San Antonio, TX. The MSAC is comprised of pre-eminent clinicians and researchers and represents expertise in microbiology, genetics, brain circuitry, epidemiology, and related fields.  MSAC members providing inaugural presentations in their area of expertise included Michelle Ehrlich, MD (Mt. Sinai School of Medicine), Niccolo Mecacci, MD, Ph.D. (Northwestern University), Jill Ostrem, MD (UCSF) and Roy Sillitoe (Baylor College of Medicine). The keynote lecture was offered by Pedro Gonzalez-Alegre, MD, Ph.D.