Are you a parent of a child with dystonia? Have you considered DBS for a movement disorder? Have you had DBS for a movement disorder?
The Baylor College of Medicine is recruiting participants for a study to learn about the experiences and perspectives of children with dystonia and their caregivers to learn what you think about pediatric deep brain stimulation (DBS). Participation would involve a short questionnaire and 60-minute interview for each the caregiver and the child/young adult, separately. We will compensate participants with a $50 Amazon gift card for completing the questionnaire and interview.
We are seeking:
• Parents of children with severe dystonia symptoms.
• Children with dystonia between the ages of 9 and 17.
• Parents of children with dystonia who are considering DBS.
• Children or adults with dystonia who declined DBS as a child or adolescent. Interviews may be done by phone, via videoconference, or in person.
To schedule an interview or for more information, please contact Laura Torgerson at firstname.lastname@example.org or at 303-249-1700.
This study is funded by the National Institutes of Health: RF1MH121371 Principal Investigators: Drs. Gabriel Lázaro-Muñoz, Eric A. Storch, Jennifer Blumenthal-Barby from Baylor College of Medicine.
Click to see the flyer below: