What's Making News

The 2012 Freedom To Move Toronto's Run/Walk being named "Chuck's Run"
May 7, 2012 - 9:24am

A trailblazing Toronto family and their courageous brother are honoured by the Dystonia Medical Research Foundation Canada. To honour a courageous individual and his trailblazing Toronto family, the Dystonia Medical Research Foundation Canada (DMRF Canada) announced today its 2012 Freedom to Move 5 km Run/Walk will be called “Chuck’s Run” in memory of Chuck Saundercook who died from Dystonia-related complications in 1978 at the age of 17.

A Disorder That Stops the Music
David Leisner at the Musician's Summit on Friday in Manhattan, where experts discussed the neurological condition called musicia
March 14, 2012 - 9:20am

JAMES R. OESTREICH - New York Times - Just because you’re a hypochondriac, to paraphrase Joseph Heller’s wry comment on paranoia, doesn’t mean you aren’t sick. And the brilliant Canadian pianist Glenn Gould was, in a phrase uttered at a medical conference over the weekend, “a world-class hypochondriac.” He was also a perfectionist, easily frustrated.

Former Oiler makes most of second chance to play
Oilers Rem Murray and Dwayne Roloson celebrate winning
March 8, 2012 - 2:07pm
By Jim Matheson, edmontonjournal.com 

The email from Rem Murray said to call him in Innsbruck, Austria. Great skiing there, right? Holiday time for the family? “Well, we have a house a mile from the Olympic downhill run, but I’m still playing hockey,” said Murray. “I’ve been in Austria four years. Yeah, the greybeard’s still playing. I’m 39 but can’t give it up.”More

The Movement Disorder that Robs you of Control
Matthew Sheppard.jpg
December 23, 2011 - 11:07am

The Globe and Mail - Adriana Barton - Matthew Sheppard can spend hours playing the video gam Minecraft, but he has trouble pouring water into a glass.  Like other 13 year old boys, he loves hurtling through nature on an ATV.  But when a waitress asks for his order,he blinks uncontrollably and shakes all over.  Matthew has dystonia, a movement disorder that casused involuntary muscle contractions and spasms. More

Dystonia Music Night Ends on a High Note
Dunnville natives Sean Dowhaniuk and Aubrey Wilson returned to Flyer?s Cafe on Saturday Oct. 15, 2011 to perform at the Queen St
October 25, 2011 - 3:39pm

By Matt Day, The Chronicle-Fran Porter came to Dunnville five years ago and always heard about the Dystonia Buskerfest which was held each year in the Sobeys foyer, but she never had the opportunity to go. More