What's Making News

Adaptive snowboard cross champion and trailblazer named Youth Ambassador for Chuck’s Run for Dystonia
Spenny SBX SirSams January 2013.jpg
May 8, 2013 - 11:33am

(TORONTO, ON) -- Snowboard cross gold medalist and Paralympian hopeful Spencer Clough, has been named Youth Ambassador for the 2013 Chuck’s 5 km Run/Walk taking place on June 2, 2013 and supporting research through the Dystonia Medical Research Foundation Canada (DMRFC).

Renkowned Violinist Honoured for Lifetime of Work
Andrew Daws.jpg
April 11, 2013 - 10:30am

Michelle Gamage, 24 hours Vancouver -When the Order of Canada organizers called to ask if he would accept the Governor General’s 2013 Lifetime Artistic Achievement Award, Andrew Dawes thought they had him confused with another person.But there was no mistake. Despite developing focal dystonia, also known as writer’s cramp, in 2006 – which quickly ended his 59 years of performing – the renowned violinist’s years of teaching and 3,000 performances were enough to win him the award.

Psychogenic Illness: When the Mind Creates Real Pain
Kylee Taylor - psychogenic dystonia
March 6, 2013 - 11:17am

WENCY LEUNG - The Globe & Mail - Kylee Taylor was distraught. For nearly two years, her teenage son, Kieran Porter, had seen multiple doctors and undergone countless medical tests, but none provided an answer for his alarming and mysterious illness.

Toronto Teen's Journey with Myoclonic Dystonia and DBS Surgery
Matthew Sheppard
December 21, 2012 - 9:36am

CITY TV Toronto and reporter Avery Haines, chronicle 13 year old Matthew Sheppard's Deep Brain Stimutlation surgery in a three part series. Mathew's Pre Surgery Story,   Matthew's DBS Surgery, Three Month Post Surgery Update

Sudbury man honoured for dystonia fundraising efforts
Dwayne Backer was presented with a Ontario Volunteer Service Award May 15 for his efforts in raising funds for the Dystonia Medi
May 24, 2012 - 9:06am

By: Heidi Ulrichsen - Sudbury Northern Life Staff - For most of his life, Dwayne Backer has lived with dystonia. For him, that means debilitating muscle spasms and poor fine motor control, preventing him from performing day-to-day tasks such as shaving his own face or writing a grocery list. More