What's Making News

July 15, 2016 - 12:39pm

The first ever Dystonia Zoo Walk is taking place in Toronto on Sunday, September 25, 2016.

Support the dystonia community in the Greater Toronto Area by registering today, and help us to raise funds for research and support programs by joining us at the Toronto Zoo.

Register for the Zoo Walk here.  Find out more about the event here.  We look forward to seeing you at the event! 

June 1, 2016 - 9:52pm

TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.

May 16, 2016 - 3:24pm

In May 2016, DMRF Founders Frances and Samuel Beltzberg were recognized by Simon Fraser University with the 2016 President's Distinguished Community Leadership Award.

In addition to founding the Dystonia Medical Research Foundation 40 years ago, the Belzberg's have demonstrated an outstanding commitment to education, human rights, health care and the arts. Their shared vision and lifetime of service, community engagement and philanthropy has profoundly improved the overall well-being of community-oriented organizations that make a difference both locally and internationally.

March 30, 2016 - 12:57pm

The Dystonia Coalition is conducting a study to develop the best way to measure the symptoms and impact of blepharospasm.

This study is being conducted at Toronto Western Hospital by Dr. Susan Fox  

For details on the study and eligibility criteria please click poster

August 24, 2015 - 4:38pm
The Toronto Star - Katrina Clarke