Physiotherapy and Dystonia

Resources for Physiotherapists

 

Dystonia Physio Exercise Hub – A Platform for Physiotherapists and Dystonia Patients

About the Platform

The platform is free to use for physiotherapists, patients, and no costs for healthcare.

Note that the platform doesn´t replace the physiotherapist. The physiotherapist has to meet the patient and do an analysis of the dystonia pattern, before they create the program. The platform is a very good tool for the physiotherapist in learning about the training, finding exercises and in creating the programs, and for the patients in the availability and understanding of their training programs.  
Anyone can go to the public page of the platform to read the information, news and see the demo.

 
For Physiotherapists

This platform is designed to help you as a physiotherapist in your treatment of patients with cervical dystonia. The platform has an external public page available on computer, tablet and smartphone and an internal closed page, addressed to physiotherapists, only available on computer. The latter contains over a hundred different exercises for cervical dystonia with descriptive text, 3D models and for half of the exercises also animations, providing both an exercise bank in your treatment and the possibility to design home training programmes. 
 

How to use the Platform

The platform is easy to use and has handy guiding filtering functions. This way, with basic knowledge of cervical dystonia, you can, after examining the patient, design a suitable personalised home exercise programme, which will be accessible to the patient through a randomised personal code. For those who do not feel comfortable with the digital, a pdf file is available with the possibility to print it on paper. As a physiotherapist, you will need to register to access the exercises, which is done through a form available under the "Register now" heading on the top menu on the website. The registration must then be approved by the manager of the respective country, after which you will receive login details via email.

It is only physiotherapists who are approved to register on the platform, and get access to the exercises and creating home training program possibilities. The patients get an individually code from the physio to write on the public page and view their programs on the mobile or computer. 
 

Click here to go to Dystonia Physio Exercise Hub
 

Swedish physiotherapist Johanna Blom has developed the platform in close collaboration with Dystonia Europe. The platform is funded by Boston Scientific Foundation Europe. We are grateful to them for allowing us to share this information.

Physiotherapists and Clinics who work with Dystonia Patients

Dystonia Trained Physiotherapists

Sally-Anne Stelling, UBC Physio and Research Clinic, (Vancouver, BC) sallyanne.stelling@ubc.ca

Trineta Bhojwani, CPRI Med and Rehab, (Vancouver/New West, BC) https://www.cprihealth.ca/

Sybille Bergin, Bergin Motion, (Barrie, ON) sybille@berginmotion.ca 705-252-0330

Alex Bergin, Bergin Motion, (Barrie, ON) alex@berginmotion.ca 705-252-0330

Barbara Forest, Skillbuilders, (Barrie, ON) barb@skillbuildersrehab.com 705-727-0319

Silvia Guido, Balance Physiotherapy, (Toronto, ON) silviag@balancephysiotherapy.com 416-386-0384

Kyle Whaley, Propel Physiotherapy, (Pickering & Etobicoke, ON) kyle@propelphysiotherapy.com 866-210-6325

Amara Wong, Vitality Physio Therapy, (Kemptville, ON) amara@vitalitypt.ca 613-425-7700

Benoit Labbe, Clinique Synapse (Lebourgneuf), (Quebec, QC)  benoit.labbe@cliniquesynapse.ca

Antoine Deschamps-Laporte, Clinique Physio Logis, (Repentigny, QC) antoine@physio-logis.com    

 

Clinics

Cairn Physiptherapy (BC) bcphysio.org/find-a-clinic/cairn-physiotherapy. Michelle Read - Registered Physiotherapist living with cervical dystonia.

Neuphysio Rehabilitation (London, ON) www.neuphysio.com

Propel Physiotherapy (Greater Toronto Area, ON) propelphysiotherapy.com/  

MedRehab Group (Greater Toronto Area, ON) medrehabgroup.com/physiotherapy-center/north-york/

One Step Ahead Mobility (Toronto, ON) onestepaheadmobility.com/

Rosedale Wellness Centre (Toronto, ON) rosedalewellness.com/ 

Neuromotrix (Montreal, QC) neuromotrix.com/en/

La Clinique Synapse (Quebec City, QC) https://cliniquesynapse.ca/

 

Please contact us if you know of any dystonia trained physiotherapists and clinics. To report any inaccuracies with this list, please email info@dystoniacanada.org  

Other Resources and Videos

Presentation by Catherine Chan, MPT - Managing Dystonia through Exercise and Physiotherapy

Videos, courtesy of DMRF (USA):

 

Special Events:


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Last update: Jul 2024