You Are Not Alone - Stories of Persons with Dystonia

We would love to hear your dystonia story.  

If you’re interested in sharing your story with us, it could be included in an upcoming newsletter or e-newsletter. 

Read on for some of the latest stories of persons with Dystonia below.

 

Generalized Dystonia

Muscle Groups Affected: Throughout the body

Shelby's Story

Brenda's Story

Sarah's Story

Shelby Newkirk

Brenda Currey

Sarah

 

Cervical Dystonia (Spasmodic Torticollis)

Muscle Groups Affected: Neck

John’s Story

Astrid’s Story

Laurie’s Story

John Fraser

Astrid

Laurie

 

Cervical Dystonia (Spasmodic Torticollis) Continued

Muscle Groups Affected: Neck

Neil’s Story

Cheryl’s Story  

Jennifer's Story

Neil

Cheryl

Jenn Ashton

 Sumbul’s Story 

   

Sumbul

   

 

 

Functional Dystonia

Muscle Groups Affected: face, neck, shoulder, torso, and/or limbs

Alicia’s Story

   

Alicia

 

 

 

Blepharospasm / Meige Syndrome

Muscle groups affected: eyelids

Myoclonus Dystonia

Muscle groups affected: neck, torso, arms

Paroxysmal Dystonia and Dyskinesias

Muscle groups affected: hands, upper body, or lower extremities

Colin’s Story

Casey's Story  


Jason's Story 

Colin

Casey

Jason Young

 

Oromandibular Dystonia

Muscle groups affected:  face, jaw, and/or tongue

Dopa-Responsive Dystonia

 

Thomas's Story

Anna's Story

 

 

 Thomas Wade

 

Anna McNabb

 

 

Other Stories

 

 Yann's Story

Jade's Story

Claire's Story

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Jesse's Story Jackson's Story

Jesse

 

Jackson Mooney

 

 


 

 

 

 

Last update: Nov 2021