You Are Not Alone - Stories of Persons with Dystonia

We would love to hear your dystonia story.  

If you’re interested in sharing your story with us, it could be included in an upcoming newsletter or e-newsletter. 

Read on for some of the latest stories of persons with Dystonia below.

 

Generalized Dystonia Muscle Groups Affected: Throughout the body
Shelby's Story	Brenda's Story	Sarah's Story

 

Cervical Dystonia (Spasmodic Torticollis) Muscle Groups Affected: Neck
John’s Story	Astrid’s Story	Laurie’s Story
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Cervical Dystonia (Spasmodic Torticollis) Continued Muscle Groups Affected: Neck
Neil’s Story	Cheryl’s Story	Jennifer's Story
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Sumbul’s Story
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Functional Dystonia Muscle Groups Affected: face, neck, shoulder, torso, and/or limbs
Alicia’s Story

 

Blepharospasm / Meige Syndrome Muscle groups affected: eyelids	Myoclonus Dystonia Muscle groups affected: neck, torso, arms	Paroxysmal Dystonia and Dyskinesias Muscle groups affected: hands, upper body, or lower extremities
Colin’s Story	Casey's Story	Jason's Story
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Oromandibular Dystonia Muscle groups affected:  face, jaw, and/or tongue	Dopa-Responsive Dystonia	Drug-Induced Dystonia Tardive Dyskinesias
Thomas's Story	Anna's Story	Living a Full Live With Tardive Dystonia
	​	Watch/Listen to Stories of How Persons are Thriving with Tardive Dystonia

 

Other Stories

 

Yann's Story	Jade's Story	Claire's Story
Jesse's Story	Jackson's Story	Jacqueline's Story
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Thank you to Dystonia Medical Research Foundation (USA) for allowing us to share the information and patient stories on Tardive Dyskineasias. The DMRF is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.