Dystonia Online Support

faceb Like DMRF Canada on Facebook

twitter Follow DMRF Canada on Twitter

youtube  Visit DMRF Canada's YouTube Channel

Facebook Group for parents of children with dystonia.  If you are a parent of a child or a teen who has dystonia in Canada, you can join our Facebook Group – the link is here.

 


Participate in a Dystonia Bulletin Board: 

Online Dystonia Bulletin Board

Musicians with Dystonia Bulletin Board

Benign Essential Blepharospasm Research Foundation Bulletin Board

Please note, these groups are not monitored by DMRF Canada nor its support group leaders. 

 


Online Dystonia Groups and Forums

Online dystonia forums are support services that are available 24 hours a day, seven days a week to people all over the world.

Facebook Group: "Canadian Dystonia Support Group" 

Facebook Group: "Cervical Dystonia Support Forum"

Facebook Group: "Oromandibular, Blepharospasm & Cranial Dystonia Support Forum"

Facebook Group: "20/30 Dystonia Group - A Forum for People in Their 20s and 30s"

Facebook Group: "Support4Parents of Children with Dystonia"

Facebook Group: "Generalized Dystonia Support Forum"

Facebook Group: "Parenting with Dystonia Support Forum"

Facebook Group: "Dystonia Spouses & Loved Ones"

Yahoo Group: "DBS for Dystonia"

Facebook Group: "Caring4Parents with Movement Disorders": Email contact@dystonia-foundation.org for more information.

Please note, these groups are not monitored by DMRF Canada nor its support group leaders. 

 


Blogs by Individuals with Dystonia and Dystonia Experts 

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We are proud to partner with these inspiring bloggers who share their personal stories about life with dystonia. If you are looking to read and connect more with individuals that are living with dystonia.  We're lucky to have such wonderful advocates who work in partnership with DMRF Canada to do more to raise awareness of this disorder. 

Dyfing Dystonia Ambassador, Casey Kidson's Blog: https://dyfyingdystonia.tumblr.com/
 

Raising Dystonia: https://raisingdystonia.wordpress.com/ 

Dystonia Living: http://dystonialiving.blogspot.com/

Life with Dystonia: http://lifewithdystonia.blogspot.ca/

DMRF Insights: http://dmrfinsights.blogspot.ca/ 

Dystonia & Special Education: http://dmrfspecialed.blogspot.ca/ 

Jean Sharon Abbott: https://www.jeanabbott.com/blog

Chronicles of a Dystonia Muse: https://dystoniamuse.com/

We are continually looking to feature more amazing blogs, if you are following someone and think they are a great fit for this community, please contact info@dystoniacanada.org and let us know!

Last update: Jan 2023