Dystonia Study Group
The Dystonia Study Group (DSG) is a non-profit group of physicians from medical centers in the United States, Canada and Europe who are experienced in the care of dystonia patients and dedicated to the clinical research of dystonia. The DSG has grown to include 73 dystonia experts from 47 geographically diverse investigative sites.
Visit dystoniastudygroup.org to inquire about research study participation.
Research Studies in Canada:
Rare Disease Caregiver Study: University of Manitoba. Until Jan. 31, 2024.
Nationwide Survey of Patients and Families: Access to Deep Brain Stimulation Surgery by McMaster University. Until May 31, 2023. Closed
Post-acute Rehabilitation Study: School of Physical Therapy, Western University, St. Joseph's Health Care London. Until July 26, 2023. Closed
Research Studies in Other Countries:
USA - Research on Focal Dystonia (Laryngeal Dystonia or Hand Dystonia) University of California San Francisco - In-person study. NO TRAVEL FUNDS.
Virtual - Diet and Dystonia by Dystonia Europe Survey - Available in 16 languages. Until July 31, 2023. Closed.