Dystonia Study Group
The Dystonia Study Group (DSG) is a non-profit group of physicians from medical centers in the United States, Canada and Europe who are experienced in the care of dystonia patients and dedicated to the clinical research of dystonia. The DSG has grown to include 73 dystonia experts from 47 geographically diverse investigative sites.
Visit dystoniastudygroup.org to inquire about research study participation.
Research Studies in Canada:
Clinical Research Studies in Canada:
TMS Study: Dr. Talyta Grippe at the Toronto Western Hospital.
Dystonia Coalition Projects: Dr. Susan Fox at the Toronto Western Hospital.
Other Research Studies in Canada listed on ClinicalTrials.gov
Social and Health Research Studies in Canada:
People with Disabilities as Social Enterprise Enablers: Tolulope Oluwafemi at Thompson Rivers University.
Maternal Disability and Child Health Care: University of Toronto. Until Dec. 20, 2024.
Rare Disease Caregiver Study: University of Manitoba. Until Jan. 31, 2024. Closed.
Parent/Caregiver Studies - Mount Royal University and McMaster University.
Research Studies in Other Countries:
USA - Research on Focal Dystonia (Laryngeal Dystonia or Hand Dystonia: University of California San Francisco - In-person study. NO TRAVEL FUNDS.
Ireland - A survey that aims to investigate the use of non-traditional therapies (herbal medicines, acupuncture, CBD oil) for people with focal dystonias: Dystonia Research Group, Dublin and University College Dublin. CLOSED