Dystonia Support Groups and Treaters by Community

DMRF Canada Support Groups and local contacts provide an opportunity for people with dystonia to come together - they can reach out and help one another, learn more about dystonia through education, guest speakers, help raise the profile of dystonia through awareness programs and contribute to research through local fundraising efforts.


Dystonia Practitioners Directory

List of Practitioners Treating Dystonia - Movement Disorder Specialists, Neurologists, Neurosurgeons, Physiatrists, and Other Professionals

Alberta

British Columbia

Manitoba

New Brunswick

Newfoundland

Nova Scotia

Ontario

Prince Edward Island

Quebec

Saskatchewan

Territories


Click here for a list of professionals by the Canadian Movement Disorders Group


Click here for a list of healthcare professionals with experience in treating people with spasmodic dysphonia and related voice conditions.


Please note: This is not a comprehensive list. If you are a physician and would like to join this list or report any inaccuracies, please email info@dystoniacanada.org

Pediatric Neurologists (Movement Disorder Specialists)

Click here for a list of pediatric neurologists in Canada.

List of Dystonia Trained Physiotherapists

For a list of resources for physiotherapy and dystonia Click Here

List of Mental Health Organizations and Support

For a listing of Mental Health Organizations and Support Click Here


Dystonia Support Groups

Support Groups and Support Leaders by City/Province

Alberta

British Columbia

Manitoba

New Brunswick

Newfoundland

Nova Scotia

Ontario

Prince Edward Island

Quebec

Saskatchewan

Territories

Support Contacts by Dystonia Type 

Blepharospasm

Cervical Dystonia

Laryngeal Dystonia(Spasmodic Dysphonia)

Oromandibular dystonia 

Writer’s Cramp (Hand Dystonia)

Drug-induced

Neurological and Metabolic Diseases

Toxins

Trauma

Embouchure dystonia

Focal Hand Dystonia in Musicians

Dopa-responsive dystonia

Functional dystonia

Generalized Dystonia

Lower Limb Dystonia

Myoclonus-Dystonia

Paroxysmal Dystonia and Dyskinesias

Pediatric Dystonia

Rapid-Onset Dystonia-Parkinsonism

X-linked Dystonia-parkinsonism

Online Support Groups

For online support groups, click here.

 

Want to Lead a Support Group

DMRF Canada is currently recruiting for Support Group Leaders and participants across the country.  To learn more about what it takes to be a Support Group Leader, click on the job description below, or email Archana Castelino, National Director: archanacastelino@dystoniacanada.org

You can view our Support Group Leader Volunteer Job Description here

You can view some resources on fundraising as a support group leader here

Check out our Dystonia Support Group Video on our Youtube channel.

NS NB SGPEI SGON SGAB SGImage MapQuebecNewfoundland SGBC Support GroupSask SuppManitoba Support Groups

Last update: Mar 2025