Dystonia Resources for Health Professionals
- Beyond Dystonia: Are We Detecting and Managing Non-Motor Symptoms Properly? by Dr. Davide Martino
Watch a presentation by Dr. Davide Martino where he presents studies and findings on non-motor symptoms in patients with dystonia, with a focus on understanding the clinical spectrum, how to detect them, and how best to manage them. Click here for more details.
- TWSTRS Rating Scale
TWSTRS.pdf ©WE MOVE™ 2002
Note: For disability and pain in the scale, it is like a "visual analogue scale" commonly used in pain research where 0 is no pain and the maximum (often 10, but in this case 5) is the worse possible pain.
- Lists of Healthcare Professionals with Experience in Treating People with Dystonia
Click here for a list of healthcare professionals that help identify appropriate treatment options and symptom management strategies for people with spasmodic dysphonia and related voice conditions. Courtesy Dysphonia International.
This is not an exhaustive list and depending on the last update of the record, it may not be a complete reflection of the practice. This directory includes primarily laryngologists, otolaryngologists (ENTs), and speech-language pathologists.
- Physiotherapy and Dystonia
Click here to view the page which incudes:
- Information and resources for physiotherapists.
- List of clinics and physiotherapists who work with dystonia patients.
- Resources for Researchers and Clinicians for the Whole Dystonia Research Community
One of the Dystonia Coalition’s goals is to create resources that are easily accessible to the whole dystonia research community. These resources include educational materials, clinical data, video recordings of clinical exams, and DNA.
To read more and access these resources through the Dystonia Coalition and Global Dystonia Registry visit https://dc.rarediseasesnetwork.org/resources-researchers-and-clinicians
- 6th International Dystonia Symposium: Positioning Dystonia Research Highlights in Canadian Practice
On June 29, 2023, a small panel of attendees and speakers shared key results, discussions, and takeaways with Canadian healthcare professionals through a webinar organized by AbbVie Institute of Health Education. This recording is available here.
- Upcoming Education Events:
International Congress of Parkinson's Disease and Movement Disorders (MDS): Highlights in Canadian Practice
Organized by AbbVie Health Institute
1. Explore the key results from selected international studies presented at the MDS International Congress
2. Discuss developing technologies and emerging controversies regarding the identification and management of Parkinson's disease and dystonia
3. Apply key takeaways to improve Parkinson’s disease and dystonia care in the Canadian landscape
Robert Chen, MA, MBBChir, MSc, FRCPC
Mandar Jog, MD, FRCP, FAAN
Davide Martino, MD, PhD
Justyna Sarna, MD, PhD, FRCPC
Date: Thursday, October 12, 2023
Time: From 7:00 pm to 8:15 pm ET / 4:00 pm to 5:15 pm PT / 8:00 pm to 9:15 pm AT
For more information on this event, kindly contact Alex Cayouette from MedPlan Communications at firstname.lastname@example.org
PO BOX 1009 STN TORONTO DOM
TORONTO ON M5K 1P2
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