Opportunities to Volunteer for DMRF Canada
- Support Group Leaders
One of the most impactful ways DMRF Canada provides support is through our Support Group Network. These groups serve as a lifeline and provide opportunities for people with dystonia and their families to connect and thrive in the community. We are looking for new Support Group Leaders to volunteer in the following communities:
Victoria BC (Co-leader)
Calgary & Edmonton AB (Casino Chairperson)
Calgary, AB (New Leader)
Fredericton NB (New leader)
Saskatoon SK (New Leader)
Hamilton ON (New Leader)
Thompson/Okanagan BC (New Leader)
Volunteers can take on different roles or tasks within the group. To read more about the Support Group Leader eligibility, role, and responsibilities please click here. If you are not interested in leading a group, but you would still like to volunteer your time, please let us know.
To volunteer in Calgary or Edmonton please clik here.
- Volunteer Opportunity – Freedom to Move: Run, Walk and Wheel for Dystonia
We’re currently seeking enthusiastic and dedicated volunteers to support Freedom to Move: Run, Walk and Wheel for Dystonia—our largest annual fundraising event! This year, the event is proudly co-hosted with Hydrocephalus Canada, bringing together two important causes for one incredible day.
📅 Event Details
Date: Sunday, June 8, 2025
Time: 8:30 AM – 12:30 PM (4 hours total)
Location: Downsview Park – Orchard Pavilion
(Corner of Keele St. and Downsview Park Blvd.)
📍 (View Map)
🙌 Volunteer Role: Cheer Volunteer (Course Marshal)
As a Cheer Volunteer, you'll be stationed along the event route to cheer on participants, provide encouragement, and help create a supportive and fun atmosphere for everyone involved. This is a perfect opportunity to enjoy the outdoors, uplift others, and play a key role in making the event memorable.
🎯 We are currently in great need of course volunteers—your energy and enthusiasm can make all the difference!
🎁 Volunteer Perks
Complimentary refreshments during the event
Confirmation letters for volunteer hours available upon request
A fun, meaningful way to support people affected by dystonia and hydrocephalus
📌 Important Information
Volunteers must be at least 16 years old on the event day
If you’re under 18, a parent or guardian must sign the waiver on your behalf
All volunteers are required to sign a waiver prior to the event
Volunteers are responsible for their own transportation
Downsview Park is accessible via TTC and GO Transit
💬 Ready to Volunteer or Have Questions?
Please contact Ingrid Exner at
📧 iexner@hydrocephalus.ca- Volunteer Opportunity at Bingo World and Gaming - Richmond Hill
Attention Greater Toronto Area Residents!
DMRF Canada is thrilled to share an exciting fundraising opportunity through Ontario Charitable Gaming Association's program Charitable Gaming Community Good with Bingo World and Gaming Richmond Hill, and the City of Richmond Hill. By volunteering your time, you'll help DMRF Canada earn a portion of the funds raised during the Bingo events. With several successful sessions already held, we’re off to a fantastic start, raising over $54,000 for dystonia research and support programs.
Volunteering Details
- Shift Duration: Each volunteer shift will last 2 hours.
- Funds Raised: Each event will generate approximately $3,000 for dystonia research and support programs.
- Commitment: We are seeking volunteers who can participate every month for at least six months.
- Requirements: Volunteers are expected to act in a way that builds public trust and confidence in the Foundation. You do not need to have dystonia to volunteer. Volunteers should be able to walk or stand for their 2-hour shift and be capable of tucking in chairs. Volunteers will be required to sign a waiver and undergo a brief screening session with Foundation staff.
- Volunteer Incentives: Volunteers will receive a DMRF Canada t-shirt and those who successfully complete six bingo sessions will receive a $200 honorarium as a thank-you for their commitment and hard work!
If you are interested in volunteering please submit this form: https://forms.office.com/r/5W65AGDZes
For more information, please click here.
Our thanks to Bingo World and Gaming Richmond Hill for this Opportunity!
Email info@dystoniacanada.org with your contact information and the community you’d like to volunteer in.