Volunteer

 Opportunities to Volunteer for DMRF Canada 

 

Support Group Leaders

One of the most impactful ways DMRF Canada provides support is through our Support Group Network. These groups serve as a lifeline and provide opportunities for people with dystonia and their families to connect and thrive in the community. We are looking for new Support Group Leaders to volunteer in the following communities: 

Victoria BC (Co-leader)

Calgary & Edmonton AB (Casino Chairperson)

Calgary, AB (New Leader)

Fredericton NB (New leader)

Saskatoon SK (New Leader)

Hamilton ON (New Leader) 

Thompson/Okanagan BC (New Leader)

Volunteers can take on different roles or tasks within the group. To read more about the Support Group Leader eligibility, role, and responsibilities please click here. If you are not interested in leading a group, but you would still like to volunteer your time, please let us know.

Volunteer Opportunity – Freedom to Move: Run, Walk and Wheel for Dystonia

We’re currently seeking enthusiastic and dedicated volunteers to support Freedom to Move: Run, Walk and Wheel for Dystonia—our largest annual fundraising event! This year, the event is proudly co-hosted with Hydrocephalus Canada, bringing together two important causes for one incredible day.

📅 Event Details

  • Date: Sunday, June 8, 2025

  • Time: 8:30 AM – 12:30 PM (4 hours total)

  • Location: Downsview Park – Orchard Pavilion
    (Corner of Keele St. and Downsview Park Blvd.)
    📍 (View Map


🙌 Volunteer Role: Cheer Volunteer (Course Marshal)

As a Cheer Volunteer, you'll be stationed along the event route to cheer on participants, provide encouragement, and help create a supportive and fun atmosphere for everyone involved. This is a perfect opportunity to enjoy the outdoors, uplift others, and play a key role in making the event memorable.

🎯 We are currently in great need of course volunteers—your energy and enthusiasm can make all the difference!


🎁 Volunteer Perks

  • Complimentary refreshments during the event

  • Confirmation letters for volunteer hours available upon request

  • A fun, meaningful way to support people affected by dystonia and hydrocephalus


📌 Important Information

  • Volunteers must be at least 16 years old on the event day

    • If you’re under 18, a parent or guardian must sign the waiver on your behalf

  • All volunteers are required to sign a waiver prior to the event

  • Volunteers are responsible for their own transportation

    • Downsview Park is accessible via TTC and GO Transit


💬 Ready to Volunteer or Have Questions?

Please contact Ingrid Exner at
📧 iexner@hydrocephalus.ca

Volunteer Opportunity at Bingo World and Gaming - Richmond Hill

Attention Greater Toronto Area Residents!


DMRF Canada is thrilled to share an exciting fundraising opportunity with Bingo World and Gaming Richmond Hill. By volunteering your time, you'll help DMRF Canada earn a portion of the funds raised during the Bingo events. With seven successful sessions already held, we’re off to a fantastic start, raising over $35,000 for dystonia research and support programs.
 

Volunteering Details

  • Shift Duration: Each volunteer shift will last 2.5 hours.
  • Funds Raised: Each event will generate approximately $3,000 for dystonia research and support programs.
  • Commitment: We are seeking volunteers who can participate every two months for at least six months. 
    • Upcoming sessions: June 3 (2PM to 4PM), June 26 (2PM to 4PM),  July 4 (4PM to 6PM), August 8 (4PM to 6PM),  September 12 (4PM to 6PM).

  • Requirements: Volunteers are expected to act in a way that builds public trust and confidence in the Foundation. You do not need to have dystonia to volunteer. Volunteers should be able to walk or stand for their 2.5-hour shift and be capable of tucking in chairs. Volunteers will be required to sign a waiver and undergo a brief screening session with Foundation staff.
  • Volunteer Incentives: Volunteers will receive a DMRF Canada t-shirt and those who successfully complete six bingo sessions will receive a $200 honorarium as a thank-you for their commitment and hard work!

If you are interested in volunteering please submit this form: https://forms.office.com/r/5W65AGDZes 


For more information, please email us at info@dystoniacanada.org or call (800) 361-8061.

Our thanks to Bingo World and Gaming Richmond Hill for this Opportunity!

Bingo World + Gaming. Proud supporters of 100+ local charities.

Email info@dystoniacanada.orgwith your contact information and the community you’d like to volunteer in.

Last update: May 2025