Thank you to Dystonia Medical Research Foundation (USA) for allowing us to share this information.
Please note that some information may be USA-based and may contain information not relevant to Canada.
- Downloadable Dystonia Informational Packages
Going Forward: Dystonia information package for newly diagnosed (Printed version available upon request)
Dystonia Symptoms Informational Poster (Printed version available upon request)
Guidebook for Teens with Dystonia (Printed version available upon request)
Dystonia Survey Report: Real Patients, Real Answers (Printed version available upon request)
What support is available for dystonia? (Printed version available upon request)
- Downloadable Fact Sheets
Burden of Dystonia is More than a Movement Disorder: Non-Motor Symptoms (Printed version available upon request)
Dystonia and Traumatic Brain Injury
X-Linked Dystonia-Parkinsonism
Red Light, Green Light! - Fact Sheet for Children
Living Well with Myoclonus-Dystonia
- Downloadable Dystonia Brochures
'What Is Dystonia?' Brochure (Printed brochures available upon request)
Blepharospasm Dystonia Brochure (Printed brochures available upon request)
Cervical dystonia (spasmodic torticollis) Brochure (Printed brochures available upon request)
Deep Brain Stimulation Brochure (Printed brochures available upon request)
Functional (Psychogenic) Dystonia Brochure (Printed brochures available upon request) (new version coming soon)
Generalized Dystonia Brochure (Printed brochures available upon request)
Laryngeal Dystonia (Spasmodic Dysphonia) Brochure (Printed brochures available upon request)Focal Hand Dystonia (Writers Cramp) (Printed brochures available upon request)
Truncal Dystonia (Axial Dystonia)
To request physical copies of brochures, kindly fill and submit the 'Request Form' by email to info@dystoniacanada.org or mail it to DMRF Canada, PO BOX 1009 STN TORONTO DOM, TORONTO ON M5K 1P2.
Other Resources:
Never Look Down - A book to help inform your child's teachers and school administrators. Consider the best way to help your child's friends and peers understand dystonia.
Email: info@dystoniacanada.org to request your copy today.