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    • Living With Dystonia
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Living With Dystonia

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Resources for Living with Dystonia

Tools and Information for Living Well with Dystonia
  • Dystonia Information Materials
  • My Dystonia & I - A Patient-to-Patient Guide by Merz Therapeutics
  • Not Born Yesterday: Dystonia & Aging
  • Assistive Technology for Dystonia
  • Exercises that trigger Dystonia 
  • Tips for Living Well with Dystonia 
  • Alleviating Maneuvers / Sensory Tricks
Tools for Your visit to the Movement Disorder Specialist
  • Dystonia Wellness Checklist
  • Making the most of your visit with your Movement Disorder Specialist 
Province Specific Resources
  • A listing of all the Movement Disorder Clinics in Canada, by province.
  • A listing of mental health resources by province
  • A listing of all the Pain Clinics in Canada, by province.
Chronic Pain and Pain Management 
  • Dystonia and Pain - Information and Webinars
  • Pain Societies, Clinics and Workshops by Province 
Your Physical And Emotional Wellbeing
  • Your Emotional and Mental Health and Dystonia
  • Emotional & Mental Health
  • Emotional Wellness Toolkit

Refer to the page on non-motor dystonia symptoms for more resources

Other Resources
  • March of Dimes supports and services for people with disabilities
  • Disability Advocacy
Last update: Jul 2023

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DMRFC Disclaimer

DMRF Canada provides general information related to dystonia. It is not intended to provide instruction and you should not rely on this information to determine diagnosis, prognosis or a course of treatment. It should not be used in place of a professional consultation with a movement disorder specialist.

DMRF Canada is not responsible for the consequences of your decisions resulting from the use of this information, including, but not limited to, your choosing to seek or not to seek professional medical care, or from choosing or not choosing specific treatment based on the information published herein. You should not disregard the advice of your physician or other qualified health care provider because of any information you receive from DMRF Canada or any other third party source. If you have any health care questions, please consult your medical practitioner.

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