Living With Dystonia

Resources for Living with Dystonia

Tools and Information for Living Well with Dystonia

• Dystonia Information Materials
• My Dystonia & I - A Patient-to-Patient Guide by Merz Therapeutics
• Not Born Yesterday: Dystonia & Aging
• Assistive Technology for Dystonia 
• Exercises that trigger Dystonia 
• Living Well with Dystonia
• Alleviating Maneuvers / Sensory Tricks

Tools for Your visit to the Movement Disorder Specialist

• Dystonia Wellness Checklist
• Making the most of your visit with your Movement Disorder Specialist  
• How to Talk with Your Doctor About Dystonia

Province Specific Resources

• A listing of all the Movement Disorder Clinics in Canada, by province.
• A listing of mental health resources by province
• A listing of all the Pain Clinics in Canada, by province.

Chronic Pain and Pain Management 

• Dystonia and Pain - Information and Webinars
• Pain Societies, Clinics and Workshops by Province 

Your Physical And Emotional Wellbeing

• Emotional Wellness Toolkit
• Articles & Tips for Coping with Dystonia
• Emotional & Mental Health Information
• Resources courtesy of Mood Disorders Society of Canada
  • MIRA: The Mental Health Virtual Assistant
  • What BETTER Feels Like: Lived experiences of healing from depression

Refer to the page on non-motor dystonia symptoms for more resources

Other Resources

Rare Disease Information and Support Centre: Information, resources, and support for any rare disease. A free and bilingual professional service.

• Quebec - rqmo.org/rare-disease-information-and-resource-centre/
• Other provinces - Write to info@rqmo.org or call toll-free: 1-888-822-2854

March of Dimes supports and services for people with disabilities

Disability Advocacy