Patient Stories

We would love to hear your dystonia story.  

If you’re interested in sharing your story with us, it could be included in an upcoming newsletter or e-newsletter. 

Read on for some of the latest patient stories below.

Generalized Dystonia

Muscle Groups Affected: Throughout the body

 

Shelby's Story

Brenda's Story

Sarah's Story

Shelby Newkirk

Brenda Currey

Sarah

 

Cervical Dystonia (Spasmodic Torticollis)

Muscle Groups Affected: Neck

John’s Story

Astrid’s Story

Laurie’s Story

Geordie and John Fraser

Astrid

Laurie

 

Neil’s Story

Cheryl’s Story  

 

Neil

Cheryl

 

 

Functional Dystonia

Muscle Groups Affected: face, neck, shoulder, torso, and/or limbs

Alicia’s Story

 Sumbul’s Story 

 

Alicia

Sumbul

 

 

Blepharospasm

Muscle groups affected: eyelids

Colin’s Story

  

 

Colin

 

 

 

Myoclonus Dystonia

Muscle groups affected: neck, torso, arms

Casey's Story

 

 

Casey

 

 

 

Dyskinesia

Muscle groups affected: hands, upper body, or lower extremities

Jason's Story 

 

 

 

 

 

 

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Other Patient Stories

 

 Claire's Story

Jesse's Story

Jackson Mooney 

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Jesse

Jackson Mooney