Neurological Health Charities Canada
DMRF Canada is a proud member of Neurological Health Charities Canada (NHCC). NHCC is a collective of organizations that represent people with chronic, often progressive, neurological and/or neuromuscular diseases, disorders, conditions and injuries (brain disorders) in Canada. The NHCC’s role is to provide leadership in evaluating and advancing new opportunities for collaboration specific to advocacy, education and research to improve the quality of life for people affected by brain conditions.
DMRF Canada National Director, Archana Castelino, serves as Vice- Chair for the NHCC.
- Advocacy Priority
- NHCC is asking the Government of Canada to immediately commit to developing a Canadian Action Plan for Brain Health to improve the lives of the one in three Canadians living with brain conditions and their families.
- Details of the road map are in our position paper Canadian Action Plan for Brain Health: Charting the Course in a Changed World and in our brief to the Standing Committee on Finance here.
- That a National Neurological Strategy for Canada be developed to tackle the knowledge gaps and needs of the millions of Canadians living with neurological disease, illness or injury.
Please visit the NHCC website to read about NHCC initiatives and to access newsletters.
- Recognizing Changemakers
NHCC’s Change Maker Award is presented to annually to an individual, or individuals who are making a difference in the lives of people impacted by brain conditions. Read on for details on some of the Change Maker award recipients from the DMRF Canada community:
Canadian Brain Research Strategy
The Dystonia Medical Research Foundation Canada is the only organization supporting the needs of 50,000 Canadians with dystonia, a neurological disorder causing involuntary movements and often depression and anxiety. Secondary dystonia links to approximately 50 conditions, from Parkinson's to Multiple Sclerosis, affecting many more. With no cure and limited treatments, research is our only hope. As part of the Canadian Brain Research Strategy (CBRS), we see the vital impact of a national effort on brain and mental health research. A unified approach can speed progress for all affected by neurological conditions, offering relief and progress for countless lives.
Read more about the work of CBRS here https://canadianbrain.ca/