Find Us on Social


You don't just have to pick up the phone to ring us anymore - we are on Facebook, Twitter, Instagram and YouTube. 

How we use social media

We use social media to react to breaking news, update supporters and share information - just like you do with your friends and followers. Our social media pages allow us to continue to grow, raise awareness and support our communities.

The more follows, likes, and supporters we have online the better. Help us to get the word out.



  @Dystonia Medical Research Foundation Canada




Support Group Led Local Facebook Groups:

Montreal Dystonia Support Group (French) is here. / Ici pour le groupe de soutien Dystonie-partage de Montréal. 

Montreal Dystonia Support Group (English) is here.

Toronto/ GTA Dystonia Support Group is here

Hamilton Dystonia Support Group is here

London Dystonia Support Group is here.

Winnipeg Dystonia Support Group is here.

Edmonton Dystonia Support Group is here.

Calgary Dystonia Support Group is here.

Greater Vancouver Area Dystonia Support Group is here.


Facebook Group for parents of children with dystonia.  If you are a parent of a child or a teen who has dystonia in Canada, you can join our Facebook Group here.


Online Dystonia Groups and Forums:

Facebook Group: "Cervical Dystonia Support Forum"

Facebook Group: "Oromandibular, Blepharospasm & Cranial Dystonia Support Forum"

Facebook Group: "20/30 Dystonia Group - A Forum for People in Their 20s and 30s"

Facebook Group: "Support4Parents of Children with Dystonia" 

Facebook Group: "Generalized Dystonia Support Forum"

Facebook Group: "Paroxysmal Dyskinesia"

Facebook Group: "Parenting with Dystonia Support Forum"

Facebook Group: "Dystonia Spouses & Loved Ones"

Facebook Group: "Caring4Parents with Movement Disorders": Email for more information.

Please note, these groups are not monitored by DMRF Canada nor its support group leaders. 



Last update: Mar 2024