People with dystonia, caregivers, and the medical professionals supporting them have access to several resources, including the following:
Tools & Resources For Living Well With Dystonia
How to Talk with Your Doctor About Dystonia
Provincial Healthcare Programs and Support
Books and Music by the Dystonia Community
Apply For The Jackson Mooney Patient Grant Today
Resources for Teens and Young Adults - Being a teen with dystonia can be a challenge, but the good news is that you are not alone. DMRF Canada has developed a list of tools that can help you to cope.
Dystonia Support Groups and Treaters by Community - DMRF Canada Support Groups and local contacts provide an opportunity for people with dystonia to come together - they can reach out and help one another, learn more about dystonia through education, guest speakers, help raise the profile of dystonia through awareness programs and contribute to research through local fundraising efforts.
Resources for Parents and Caregivers - The participation and support of family members and friends is critical for the successful care of people living with dystonia. However, supporting someone with a disorder like dystonia can take a toll on the main caregiver too, and family members as well. Find the resources you need here.
Resources for Health Professionals
Cyber Safety - A key challenge we face in the digital information age, is the fact that anyone can put anything on the internet. DMRF Canada has compiled some resources to help the dystonia community discern between information that is available from trusted sources, vs. information promoted by unverified sources. Read on to help you make the most of what you find online.