September marks Dystonia Awareness Month. DMRF Canada is proudly partnering with AbbVie Canada on a national PR campaign to define the impact of cervical dystonia across Canada.
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August 26, 2024
DMRF Canada is pleased to announce our continued support of the Banting Research Foundation Discovery Award Program for 2025.
The Banting Research Foundation Discovery Award, supported by DMRF Canada, is a one-year grant of up to $30,000 per year that will support research related to the causes, mechanisms, prevention, and treatments which could potentially enable medical breakthroughs and transformative health care advances to find a cure for dystonia.
Read more... July 2, 2024
The 2023 IDS6 Summary is Available Now!The Samuel Belzberg 6th International Dystonia Symposium, held in Dublin, Ireland last year, brought together top dystonia researchers from 32 countries, including 68 faculty members and nearly 350 attendees, all striving for a deeper understanding of dystonia and how to treat those affected. Read more...
April 16, 2024
Joining Forces With The Dystonia Community Nationwide For Greater Impact. Freedom To Move: Run, Walk And Wheel For Dystonia Is Taking Place Across Canada June 1 – 30, 2024
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April 16, 2024
Amidst a landscape crowded with nonprofit contenders, two small yet impactful charities join forces to create a more sustainable event: Hydrocephalus Canada and Dystonia Medical Research Foundation Canada Partner to Host In-Person Walk Event Taking Place June 2nd, 2024 in Downsview Park, Toronto
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October 31, 2023
TORONTO, ON, October 31, 2023 — To address the dystonia community’s needs in a post-pandemic world, the Dystonia Medical Research Foundation (DMRF) Canada has developed the innovative Community Support and Education Program. The program’s launch renews dystonia patients’ opportunities to learn, connect, and unite with each other.
Utilizing DMRF Canada’s robust network of support groups across the country, the program connects members of the dystonia community through three impactful initiatives:
Read more... July 27, 2023
August 2023
DMRF Canada is pleased to announce the recipient of the 2023 Jackson Mooney Patient Grant for Dystonia (JMPG). This annual grant, established by Jackson and Jefferson Mooney, aims to provide financial assistance of up to $5,000.00 for Canadian residents living with dystonia in financial need and committed to enhancing their current situation through furthering their education.
This year, we are pleased to support a very worthy candidate:
Amanda Loewen
Read more... June 21, 2023
April 17, 2023
With the support of a very generous donor, DMRF Canada is facilitating a one-year, multi-center research project that will aim to validate a clinical and deep learning-based tool for recognition assessment and monitoring of complex movement disorders in dystonia patients.
“If successfully completed, this project will provide a dynamic system for unbiased diagnosis and clinical evaluation of dystonia and other movement disorders.” - DMRF Chief Scientific Advisor Jan Teller
Read more... January 19, 2023
Nationwide Survey of Patients and Families: Access to Deep Brain Stimulation Surgery
Deep brain stimulation (DBS) is a surgical treatment available to some patients with certain motor disorders (Parkinson's Disease, essential tremor, primary dystonia) where a small device is implanted within the brain to help treat symptoms. A thorough assessment by a multidisciplinary team determines candidacy for this surgical treatment, as not all patients with these diagnoses would benefit from this therapy.
What is this survey about?
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