Dystonia Canada News

Join the Dystonia Community: Walk, Run and Wheel for a Cure: on Sunday June 2, 2019, High Park, Toronto

DMRF Canada is committed to helping you live your best life with dystonia. 

The next time you are visiting your movement disorder specialist, look out for the Dystonia Wellness Checklist. This is a short test that asks questions about your well being to identify areas where you may need additional support.  

DMRF Canada was thrilled with the results of our recent 2019 neurotoxin survey. We had close to 300 responses from individuals from all over the country.

A very sincere thank you to anyone who took the time to answer this survey.  This information will be used by DMRF Canada to help to improve the dystonia patient experience, and we appreciate your honesty and feedback. 

Congratulations to the following Grand Prize Winners. These lucky individuals will receive a $500 gift card from VISA:

Tracy H from Dresden, ON

Sarah A from Winnipeg, MB

Please note that there is an individual(s) who are posing as DMRF Canada staff members using email names. This individual is asking others for their personal details including phone number and email. Please note that this is not a legitimate request from DMRF Canada. Please check for legitimacy of email by the DMRF Canada domain name @dystoniacanada.org

Chuck’s Run, Walk and Wheel 5KM for Dystonia is a fun, family-friendly event, hosted at High Park, Toronto on Sunday, June 2, 2019, to raise awareness and funds for dystonia, a neurological movement disorder.  Thanks to the support of the dystonia community, this year's Chuck's Run, Walk and Wheel was another great success!  Click here if you'd still like to make a donation. 

In February, the DMRF held our annual research meeting in San Antonio, TX. The MSAC is comprised of pre-eminent clinicians and researchers and represents expertise in microbiology, genetics, brain circuitry, epidemiology, and related fields.  MSAC members providing inaugural presentations in their area of expertise included Michelle Ehrlich, MD (Mt. Sinai School of Medicine), Niccolo Mecacci, MD, Ph.D. (Northwestern University), Jill Ostrem, MD (UCSF) and Roy Sillitoe (Baylor College of Medicine). The keynote lecture was offered by Pedro Gonzalez-Alegre, MD, Ph.D.

The DMRF is pleased to announce the appointment of Joel S. Perlmutter, MD as Scientific Director. (Pictured with Scientific Director Emeritus, Mahlon Delong, MD.)

We’re thrilled to introduce the 2019 Chuck’s Run Ambassador, Sarah-Anne.

Last year, Sarah-Anne and her family participated in Chuck’s Run, and it was a pivotal point in Sarah’s journey with dystonia.  “ To see the community come together – to know that so many people there – strangers who I didn’t know - had once been alone like me - was a feeling like no other.”

November 2018: The DMRF Canada Board of Directors is pleased and proud to announce the launch of a new grant intended to fund research that could lead to better clinical treatments for dystonia patients. "DMRF Canada is committed to supporting the highest quality dystonia research in Canada," said Stefanie Ince, Executive Director.

This is the second research investment that has been announced this fall, following the launch of a two year Clinical Fellowship which was launched in October 2018. 

Mike Stroh, friend of DMRF Canada and the Founder of Starts with Me, has published a Self Care and Self Awareness Guide:   

Everyday practices to improve wellbeing, promote resilience, and nurture self compassion.

Click on the link below to download the Guide Today.