Dystonia Canada News

June 15, 2018

Our thanks to those of you who have participated in the various run, walk and wheel events that have taken place this Spring.

For updates the on the various events see below:

Scotiabank Walk - April 2018

Chuck's Run, Walk and Wheel for Dystonia - June 2018

Hamilton Freedom to Move - June 2018

Sudbury Freedom to Move - June 2018

Vancouver Scotiabank Walk - June 2018

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May 16, 2018

Francais

National AccessAbility Week 2019 runs from May 26 – June 1, 2019.

This Week celebrates the contributions of people with disabilities and impairments, their communities and workplaces.

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April 25, 2018

DMRF Canada is thrilled to announce a FREE Two Day Dystonia Symposium taking place in Calgary in September 2018. Special guests and speakers include: Patient Advocate Tom Seaman, Movement Disorder Specialists Dr. Martino, Dr. Suchowersky and Dr. Kiss - plus sessions on meditation, adjunctive therapy, pain management sessions, and much more!

Space is Limited! Click here to learn more and to register.

 

With Sincere Thanks to our Generous Sponsors: 

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April 17, 2018

We're thrilled to announce that Casey Kidson, Founder of Dyfying Dystonia, has been recognized as the 2017 recipient of the Change-Maker Award by Neurological Health Charities Canada (NHCC); a coalition of organizations that represent people with brain diseases, disorders and injuries in Canada. The NHCC Change-Maker Award, first launched in 2011, aims to recognize outstanding contributions and leadership in inclusion, innovation and integration for the benefit of Canadians living with brain conditions.

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April 16, 2018

We're thrilled to announce that Casey Kidson, Founder of Dyfying Dystonia, has been recognized as the 2017 recipient of the Change-Maker Award by Neurological Health Charities Canada (NHCC); a coalition of organizations that represent people with brain diseases, disorders and injuries in Canada. The NHCC Change-Maker Award, first launched in 2011, aims to recognize outstanding contributions and leadership in inclusion, innovation and integration for the benefit of Canadians living with brain conditions.

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April 16, 2018

The Jewish Family Service Calgary is honouring long time DMRF Canada Board Member Lil Faider at an event taking place in Calgary, AB on April 29, 2018. Lil is being honored for her exceptional contribution to so many organisations in Calgary including the DMRF Canada.

DMRF Canada is thrilled that Lil is getting this well deserved recognition and on behalf of the DMRF Canada Board of Directors, our network of volunteers, and the hundreds of individuals with dystonia who have benefitted from Lil's service and generosity, we congratulate her.

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March 29, 2018

In recent months, DMRF Canada has received an increasing number of inquiries from dystonia patients about the efficacy of medical marijuana for the treatment of dystonia and other movement disorders. The research in this area is still inconclusive, with more studies on the way. Our Spring 2018 Newsletter included an article about what we now so far.  Please find a list of sources below:

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March 27, 2018

"We are very excited to serve as the home of the first Clinical Fellowship for Movement Disorders supported by Allergan Canada. The committee couldn't have selected a better candidate than Dr. Lizarraga, a bright, enthusiastic, inquisitive and dedicated young movement disorders trainee who will definitely make the most of this support and will make the Canadian dystonia community proud." - Dr. Anthony Lang, Toronto Western Hospital 

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March 5, 2018
This past month, members of the the DMRF Medical and Scientific Advisory Committee (MSAC) representing key opinion leaders in movement disorders, neuroscience and related fields met in Texas to offer their guidance on future research directions and priorities. Read more...
March 1, 2018

As a proud member of Neurological Health Charities Canada (NHCC), DMRF Canada is pleased to present an opinion piece in the Globe and Mail that speaks to the urgent need for additional research funding and more supports provided to individuals dealing with neurological conditions in Canada. Read the article here.

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