Prime Minister Justin Trudeau was present on December 16, 2016 at the Montreal Neurological Institute and Hospital for the announcement of the donation of $20 million by the Larry and Judy Tanenbaum family. This gift, which McGill University calls “transformative”, will help to establish the Tanenbaum Open Science Institute, to facilitate the sharing of neuroscience findings worldwide to accelerate the discovery of leading edge therapeutics to treat neurological conditions.
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September 12, 2016
DMRF Scientific Director Dr. Mahlon DeLong has made pioneering discoveries in the neuroscience of movement and movement disorders that contributed greatly to the resurgence of functional stereotaxic surgery for these disorders. His long-time leadership at the DMRF has been transformational and inspired many in the dystonia field.
Read more... June 5, 2016
The 2022 Freedom to Move: Run, Walk and Wheel for Dystonia is taking place from June 1, 2022, to June 30, 2022.
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June 1, 2016
TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.
Read more... May 16, 2016
In May 2016, DMRF Founders Frances and Samuel Beltzberg were recognized by Simon Fraser University with the 2016 President's Distinguished Community Leadership Award.
In addition to founding the Dystonia Medical Research Foundation 40 years ago, the Belzberg's have demonstrated an outstanding commitment to education, human rights, health care and the arts. Their shared vision and lifetime of service, community engagement and philanthropy has profoundly improved the overall well-being of community-oriented organizations that make a difference both locally and internationally.
Read more... March 30, 2016
The Dystonia Coalition is conducting a study to develop the best way to measure the symptoms and impact of blepharospasm.
This study is being conducted at Toronto Western Hospital by Dr. Susan Fox
For details on the study and eligibility criteria please click poster
Read more... March 18, 2016
The Daily Gleaner By: Kelly Cormier March 12, 2016
Tim Williston’s life took a dramatic turn 12 years ago when he received an unexpected medical diagnosis. But today the 60-year-old Fredericton man is living life to the fullest and wants to help others with the same disorder by telling his story and offering support. Williston has dystonia, a neurological movement disorder that causes the muscles to contract and spasm involuntarily. The first symptoms hit in 2004 when Williston and his wife, Nancy, were on vacation.
Read more... January 27, 2016
Support Casey Kidson as she continues to "Dyfy Dystonia"
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