Support for Parents and Caregivers

The participation and support of family members and friends is critical for the successful care of people living with dystonia. However, supporting someone with a disorder like dystonia can take a toll on the main caregiver too, and family members as well.

Despite the challenges, caring for someone suffering from dystonia is a very fulfilling role benefiting you and your loved ones in many ways. Caring for your loved one with dystonia can greatly improve their quality of life, demonstrate how committed you are to providing as much help and support as you can, and provide an opportunity for you to develop a stronger, closer relationship.

Click below for details on caring for your loved ones who suffer from dystonia: 


Has your child been diagnosed with dystonia? If so click below for resources: 

for Parents


Last update: Sep 2018