September is Dystonia Awareness Month

en français

Help Us to Raise Awareness for Dystonia

Join Dystonia Medical Research Foundation (DMRF) Canada to create awareness through the "Dystonia Moves Me" awareness campaign, taking place during the month of September 2018.  You can be one of thousands of volunteers across Canada and the U.S whose goal is to increase dystonia awareness and reach those who are undiagnosed.

Become A Dystonia Ambassador!  There are a number of ways for you to get involved.  Here's How: 

  1. Participate in the campaign by inviting local healthcare professionals to display dystonia awareness materials in their waiting rooms.  DMRF Canada will provide all of the materials required to get the word out. 
  2. Promote Dystonia Awareness Through Social Media:Throughout the month of September, post, tweet, message, and promote dystonia awareness using #dystoniamovescanada #dystoniamovesme  #dystoniaawareneness to your networks.                             

 If you want to become a Dystonia Awareness Ambassador for our September campaign, please email: with the following details:

  1. First and Last Name
  2. Mailing Address
  3. Email address
  4. Phone Number
  5. Local community/city/town you represent
  6. How many flyers you would like us to send to you
  7. The date when you would like these flyers to be delivered
  8. Any specific personal mobility challenges we should know about

Based on feedback last year following the campaign, DMRF Canada will be promoting the campaign on a larger scale this year with more public announcements, more noise (online and offline), enhanced public relations activities, and at least two symposium events taking place in September (one in Calgary and one in Montreal). 


Dystonia Moves Canada – Dystonia Landmarks Lit Up In September 2018

Check our Calendar below for landmarks all over Canada that will promote dystonia awareness.   






September 2, 2018

8:00 PM – 10:00 PM EST

White and Blue

CN Tower

Toronto, ON

September 2, 2018



BC Place Stadium

Vancouver, BC

September 3, 2018

Sunset - Midnight
6:00 AM - sunrise


High level bridge

Edmonton, AB

September 13, 2018


Sunset - Sunrise


City Hall

Lethbridge, AB

September 30, 2018

10:00 PM – 10:15 PM EST


Niagara Falls

Niagara Falls, ON

Get your selfie and don't forget to #dystoniamovescanada #dystoniamovesme #dystoniaawareneness in your pictures! Please check back as we update the calendar with more landmarks.