Dystonia Online Support

The Internet is a valuable resource to communicate with others in the dystonia community.

Online dystonia forums are support services that are available 24 hours a day, seven days a week to people all over the world.

faceb Like DMRF Canada on Facebook

twitter Follow DMRF Canada on Twitter

youtube  Visit DMRF Canada's YouTube Channel

Participate in a Dystonia Bulletin Board: 

Online Dystonia Bulletin Board

Musicians with Dystonia Bulletin Board

Benign Essential Blepharospasm Research Foundation Bulletin Board

Patient and Family Run Online Dystonia Groups: 

Dystonia Parents and Families in Canada Support Program: We recently received the much-needed funding to launch a support program specifically for parents of children and teens who have dystonia, as well as the children and teens who are affected by the disorder. Click here to find out more information

Facebook Group: "Dystonia Awareness Canada"

Facebook Group: "Parents of Canadian children with Dystonia"

Facebook Group: "Cervical Dystonia Support Forum"

Facebook Group: "Oromandibular, Blepharospasm & Cranial Dystonia Support Forum"

Facebook Group: "20/30 Dystonia Group - A Forum for People in Their 20s and 30s"

Facebook Group: "Support4Parents of Children with Dystonia"

Facebook Group: "Generalized Dystonia Support Forum"

Facebook Group: "Parenting with Dystonia Support Forum"

Facebook Group: "Dystonia Spouses & Loved Ones"

Yahoo Group: "DBS for Dystonia"

Facebook Group: "Caring4Parents with Movement Disorders": Email contact@dystonia-foundation.org for more information.

We have launched a Facebook Group for parents of children with dystonia.  If you are a parent of a child or a teen who has dystoniain Canada, you can join our Facebook Group – the link is here.


Blogs by Individuals with Dystonia and Dystonia Experts 



We are proud to partner with these inspiring bloggers who share their personal stories about life with dystonia. If you are looking to read and connect more with individuals that are living with dystonia.  We're lucky to have such wonderful advocates who work in partnership with DMRF Canada to do more to raise awareness of this disorder. 

Dyfing Dystonia Ambassador, Casey Kidson's Blog: https://dyfyingdystonia.tumblr.com/

Raising Dystonia: https://raisingdystonia.wordpress.com/ 

Dystonia Living: http://dystonialiving.blogspot.com/

Life with Dystonia: http://lifewithdystonia.blogspot.ca/

DMRF Insights: http://dmrfinsights.blogspot.ca/ 

Dystonia & Special Education: http://dmrfspecialed.blogspot.ca/ 

Jean Sharon Abbott: https://www.jeanabbott.com/blog

Chronicles of a Dystonia Muse: https://dystoniamuse.com/

We are continually looking to feature more amazing blogs, if you are following someone and think they are a great fit for this community, please contact info@dystoniacanada.org and let us know!

Last update: Sep 2022