Dystonia Resources for Health Professionals
- Beyond Dystonia: Are We Detecting and Managing Non-Motor Symptoms Properly? by Dr. Davide Martino
Watch a presentation by Dr. Davide Martino where he presents studies and findings on non-motor symptoms in patients with dystonia, with a focus on understanding the clinical spectrum, how to detect them, and how best to manage them. Click here for more details.
- TWSTRS Rating Scale
TWSTRS.pdf ©WE MOVE™ 2002
TWSTRS_severity_scale_details.pdf
Note: For disability and pain in the scale, it is like a "visual analogue scale" commonly used in pain research where 0 is no pain and the maximum (often 10, but in this case 5) is the worse possible pain.
- Lists of Healthcare Professionals with Experience in Treating People with Dystonia
Click here for a list of healthcare professionals that help identify appropriate treatment options and symptom management strategies for people with spasmodic dysphonia and related voice conditions. Courtesy Dysphonia International.
This is not an exhaustive list and depending on the last update of the record, it may not be a complete reflection of the practice. This directory includes primarily laryngologists, otolaryngologists (ENTs), and speech-language pathologists.Click here for a list of professionals by the Canadian Movement Disorders Group.
Click here for a list of pediatric neurologists in Canada.
Please note: This is not a comprehensive list. If you are a physician and would like to join this list or report any inaccuracies, please email info@dystoniacanada.org
- Physiotherapy and Dystonia
Click here to view the page which incudes:
- Information and resources for physiotherapists.
- List of clinics and physiotherapists who work with dystonia patients.
- Other Allied Health Professionals
Hideaki Kanamaru (Massage Therapist) - kanamaruperformance.com
1-778-686-9258
info@kanamaruperformance.com
411 Brink Street
Ashcroft, BC V0K 1A0
- Resources for Researchers and Clinicians for the Whole Dystonia Research Community
One of the Dystonia Coalition’s goals is to create resources that are easily accessible to the whole dystonia research community. These resources include educational materials, clinical data, video recordings of clinical exams, and DNA.
To read more and access these resources through the Dystonia Coalition and Global Dystonia Registry visit https://dc.rarediseasesnetwork.org/resources-researchers-and-clinicians
- 6th International Dystonia Symposium: Positioning Dystonia Research Highlights in Canadian Practice
On June 29, 2023, a small panel of attendees and speakers shared key results, discussions, and takeaways with Canadian healthcare professionals through a webinar organized by AbbVie Institute of Health Education. This recording is available here.
Upcoming Education Events:
12th Dystonia Coalition International Meeting - The meeting will take place on 8 November 2024, at the Westin Peachtree Plaza, 210 Peachtree St NW, Atlanta, GA 30303, USA preceding with a reception on November 7th. The focus of the meeting is understanding the relationships between dystonia and tremors. For more details and to register, please click here.
3rd Annual Canadian Movement Disorders Meeting - Taking place on November 8 and 9, 2024, at the Sheraton Centre Hotel in Toronto. Complimentary hotel, travel, and registration spots are available for research and clinical trainees whose research is focused on movement disorders and related conditions. Also, they are offering to cover travel, hotel, and registration costs for up to one MD and one allied health professional within each of the movement disorder clinics across Canada. For more details and to register, please click here.
Dystonia Educational Materials
To order materials for your clinic, kindly fill and submit the 'Request Form' by email to info@dystoniacanada.org or mail it to DMRF Canada, PO BOX 1009 STN TORONTO DOM, TORONTO ON M5K 1P2.
Please note: DMRF Canada takes no responsibility for the accuracy, currency, reliability, and correctness of any information included in the Information provided by third parties to the Dystonia Canada web site nor for the accuracy, currency, reliability, and correctness of links or references to information sources (including Internet Sites) outside of the Dystonia Canada web site.
Links to other Internet Sites are for information only. Care has been taken in providing these links as suitable reference resources. However, due to the changing nature of the Internet content, it is the responsibility of the users to make their own investigations, decisions, inquiries about the information retrieved from other Internet Sites. Providing these links does not imply any endorsement, non-endorsement, support or commercial gain by DMRF Canada. Please consult a professional before taking any further action.