Dystonia Resources for Health Professionals
- Beyond Dystonia: Are We Detecting and Managing Non-Motor Symptoms Properly? by Dr. Davide Martino
Watch a presentation by Dr. Davide Martino where he presents studies and findings on non-motor symptoms in patients with dystonia, with a focus on understanding the clinical spectrum, how to detect them, and how best to manage them. Click here for more details.
- TWSTRS rating scale
TWSTRS.pdf ©WE MOVE™ 2002
TWSTRS_severity_scale_details.pdf
Note: For disability and pain in the scale, it is like a "visual analogue scale" commonly used in pain research where 0 is no pain and the maximum (often 10, but in this case 5) is the worse possible pain.
- Healthcare professionals with experience in treating people with spasmodic dysphonia and related voice conditions
Click here for a list of healthcare professionals that help identify appropriate treatment options and symptom management strategies. Courtesy Dysphonia International.
This is not an exhaustive list and depending on the last update of the record, it may not be a complete reflection of the practice. This directory includes primarily laryngologists, otolaryngologists (ENTs), and speech-language pathologists.
- Physiotherapy and Dystonia
Click here to view the page which incudes:
- Information and resources for physiotherapists.
- List of clinics and physiotherapists who work with dystonia patients.
Education Events
SPRInt PROGRAM FOR CERVICAL DYSTONIA
THURSDAY, JUNE 15TH, 2023
12:00 PM - 1:00 PM EDT
Hosted by Merz Therapeutics
SPEAKER & MODERATOR
Dr. Anna Castagna
Neurologist, Speaker Fondazione Don Carlo Gnocchi, Milan, Italy
Dr. Castagna specializes in the treatment of movement disorders
Dr. Phillippe Rizek
Neurologist, Moderator Credit Valley Hospital, Mississauga
Dr. Rizek specializes in movement disorders and neurophysiology
RATIONALE
There is a need for a structured, evidence-based neurorehabilitation program in Canada. Currently, only a few physiotherapists have been trained in this area. This program will highlight the value of the Sensorimotor Perceptive Rehabilitation Integrated (SPRInt) Program as an adjunctive therapy for patients with cervical dystonia (CD).
LEARNING OBJECTIVES
Introduce the concept and general principles of the SPRInt program as an adjunctive therapy for CD
Examine current challenges and gaps in neurorehabilitation for patients with CD
Review the theory, design, implementation and results of the SPRInt Program
Discuss best practices for a multidisciplinary approach to care for CD patients
AUDIENCE
Neurologists, Physiatrists, and Neuro Physiotherapists who treat CD. Kindly complete the pre-program survey: https://www.surveymonkey.com/r/SPRINT2023
To attend RSVP to Alison.Bennett@merz.com
Please note: DMRF Canada takes no responsibility for the accuracy, currency, reliability, and correctness of any information included in the Information provided by third parties to the Dystonia Canada web site nor for the accuracy, currency, reliability, and correctness of links or references to information sources (including Internet Sites) outside of the Dystonia Canada web site.
Links to other Internet Sites are for information only. Care has been taken in providing these links as suitable reference resources. However, due to the changing nature of the Internet content, it is the responsibility of the users to make their own investigations, decisions, inquiries about the information retrieved from other Internet Sites. Providing these links does not imply any endorsement, non-endorsement, support or commercial gain by DMRF Canada. Please consult a professional before taking any further action.