Dystonia Canada News

June 8, 2023

To Freedom To Move Participants, Sponsors, Volunteers, Vendors and Community Partners

We have been counting down the days until we could all be together in person again at this year’s Freedom to Move: Run, Walk and Wheel for Dystonia, that was scheduled to take place at Downsview Park in Toronto on Sunday, June 11th. 

April 17, 2023

With the support of a very generous donor, DMRF Canada is facilitating a one-year, multi-center research project that will aim to validate a clinical and deep learning-based tool for recognition assessment and monitoring of complex movement disorders in dystonia patients.

“If successfully completed, this project will provide a dynamic system for unbiased diagnosis and clinical evaluation of dystonia and other movement disorders.” - DMRF Chief Scientific Advisor Jan Teller

January 19, 2023

Nationwide Survey of Patients and Families: Access to Deep Brain Stimulation Surgery

Deep brain stimulation (DBS) is a surgical treatment available to some patients with certain motor disorders (Parkinson's Disease, essential tremor, primary dystonia) where a small device is implanted within the brain to help treat symptoms. A thorough assessment by a multidisciplinary team determines candidacy for this surgical treatment, as not all patients with these diagnoses would benefit from this therapy.

What is this survey about?

November 2, 2022

November 2, 2022 – Dystonia Medical Research Foundation (DMRF) Canada is pleased to announce that once again it is supporting a two-year Clinical and Research Fellowship for Movement Disorders, with a specialty in Dystonia. Read more...

October 21, 2022

DMRF Canada is pleased to announce our continued support of the Banting Research Foundation Discovery Award Program for 2023.

The Banting Research Foundation Discovery Award, supported by DMRF Canada, is a one-year grant of up to $30,000 per year that will support research related to the causes, mechanisms, prevention, and treatments which could potentially enable medical breakthroughs and transformative health care advances to find a cure for dystonia.

October 21, 2022
DMRF Canada is pleased to partner with Canadian organization Rare Diseases: Models & Mechanisms Network (RDMM) to fund a new research grant with lead investigator Paul Marcogliese, PhD, Assistant Professor, Biochemistry & Medical Genetics, Rady College of Medicine at the University of Manitoba. Read more...
September 16, 2022

The dystonia community had the chance to hear more about what Dr. JiaRen Chai, DMRF Canada Clinical and Research Fellow, has been up to since his Fellowship began in July 2021. JiaRen Chai, MD, London Movement Disorders Centre at the University of Western Ontario, provided an overview of his work to date in an exclusive DMRF Canada hosted webinar earlier this spring.

August 8, 2022

DMRF Canada, along with Merz Therapeutics, is pleased to partially support the 2022 Dystonia Coalition Pilot Projects Program Award, “Moodscreen for Cervical Dystonia: A Diagnostic Accuracy Study of Depression and Anxiety” with lead investigator, Davide Martino, MD, PhD, of the University of Calgary. Read more...

July 5, 2022

DMRF Canada is pleased to announce our support of 2022-2023 Banting Research Foundation Discovery Award recipient, Luka Milosevic.

June 1, 2022



Join Us for Freedom to Move: Run, Walk and Wheel to Raise Funds for Dystonia Taking Place Across Canada from June 1 to 30