The dystonia community is filled with leaders and champions, one of them being Sumbul Zafar. Sumbul is a wife, a mother to three wonderful children, a business owner, a competitive swimmer and someone living with dystonia. Sumbul has launched her own campaign to raise awareness and funds for dystonia as she swims her way to the 2023 Fina World Masters Championship in Japan.
DMRF Canada had the chance to sit down with Sumbul and ask her a few questions.
How long did it take to get your dystonia diagnosis?
It took a year for me to get diagnosed with cervical dystonia. I had suffered a stroke like episode in the fall of 2013 and it left me with residual symptoms such as face twitches, neck twisting and the right side of my body would spasm involuntarily.
What was your first thought after you were diagnosed?
What has made you decide to pursue such an ambitious goal to support DMRF Canada and dystonia awareness?
While embarking on this goal, I hope to raise awareness and donations for dystonia and the Dystonia Medical Research Foundation Canada. This neuromuscular disorder is one that affects over 50,000 patients in Canada for which there is limited expertise amongst the medical and paramedical communities (i.e. massage therapy, physiotherapy, osteopathy, etc). DMRF Canada has supported me along with so many others who have been impacted by Dystonia. I believe that strength comes in numbers. The more people who know about dystonia, the more it will strengthen the dystonia community and the support for ongoing research.
Click here to view Sumbul's Campaign on Canada Helps.