The Dystonia Medical Research Foundation of Alberta (DMRFA) is an organization of individuals affected by dystonia with the goal to provide a platform for members and support persons to share experiences, find support, and access resources. The group also organizes activities, presentations, fundraising initiatives (including casino events), which play a vital role in advancing dystonia research and enhancing patient care.
Researchers at the University of Calgary are recruiting people living with cervical dystonia for a multidisciplinary study on adult-onset idiopathic dystonia. Participation involves one visit of approximately two hours. To learn more about eligibility and other details, visit.
To view the presentations on physiotherapy (brain training for dystonia), patient awareness and pathways to diagnosis and treatment, and treatment approaches, including DBS, click here.
Officers and Team Members
The Calgary Dystonia Support Group is led by dedicated volunteers:
