Alberta Dystonia Support Network and Practitioners

Red Deer – Calgary – Lethbridge 

 

DMRFA poster

 

The Dystonia Medical Research Foundation of Alberta (DMRFA) is an organization of individuals affected by dystonia with the goal to provide a platform for members and support persons to share experiences, find support, and access resources. The group also organizes activities, presentations, fundraising initiatives (including casino events), which play a vital role in advancing dystonia research and enhancing patient care.

To join, email albertasupport@dystoniacanada.org with your name and mailing address. 


FTM Logo

Every June, Canadians from coast-to-coast unite to raise awareness and critical funds for dystonia. To date, Freedom to Move has raised over $1 million to fund research, support programs, and advocacy efforts for people living with dystonia. We invite you to join us in a celebration of strength, community, and determination to make a positive impact for those living with dystonia.

To register for the Red Deer – Calgary – Lethbridge area, please click here.


2025 Alberta Dystonia Symposium Presentations
To view the presentations on physiotherapy (brain training for dystonia), patient awareness and pathways to diagnosis and treatment, and treatment approaches, including DBS, click here.

Officers and Team Members

The Calgary Dystonia Support Group is led by dedicated volunteers:

President: Astrid Russell Frauscher

Treasurer: Carol Campbell

Secretary: Elizabeth (Libby) Graham

DMRFC Liaison: Catherine Mulkins

Support Group Leader: Brett Seiler 

Leaders / Contact
Name
Astrid Frauscher , Support Group Leader
Phone
(587) 436-8489
Name
Brett Seiler, Support Group Leader
Phone
(403) 813-2488
Name
Administrative Assistant, Julie Leavitt
Upcoming Events in this Area
Local Medical Professionals / Movement Disorder Specialists
Name
Alberta-wide Rehab Advice Line (Monday to Friday) provides rehabilitation advice and general information for Albertans of any age)
Phone
811 or 1-833-379-0563 (toll free)
Name
Movement Disorders Clinic (Calgary)
Phone
(403) 944-4364
Contacts
Dr. Davide Martino, Dr. Sarah Furtado, Dr. Scott Kraft, Dr. Tamara Pringsheim, Dr. Justyna Sarna, Dr. Veronica Bruno
Name
South Health Campus - Movement Disorders Program | Alberta Health Services (Calgary)
Address
5th Floor Outpatient Tower, 4448 Front Street SE, Calgary, Alberta T3M 1M4
Phone
(403) 956-3550
Name
Clinical Neurosciences, University of Calgary
Address
RM 1AC58, HRIC 3280 Hospital Drive NW, Calgary AB T2N4N1
Contacts
Dr. Zelma Kiss
Name
Alberta Neurologic Centre (Calgary)
Address
Suite 300, 1608 – 17th Avenue SW, Calgary, AB T2T 0E3
Email
reception@ancentre.ca
Phone
(587) 747-5615
Contacts
Jacquie Townsend, Physiotherapist, BMR PT
Name
Dr. Michael Ashenhurst & Dr. Vivian Hill: Eye Physicians and Surgeons (Calgary)
Phone
(403) 245-3171
Contacts
Dr. Michael Ashenhurst
Name
Evidence Sport and Spine North (Calgary)
Phone
(403) 210-8026
Contacts
Dr. Tony Giantomaso
Name
Dr. J Douglas Bosch: Otolaryngologist (ENT), Spasmodic Dysphonia (Calgary)
Address
201 506 71 Ave South West, Calgary, AB T2V 4V4
Phone
403-228-3300
Contacts
Dr. J Douglas Bosch
Name
Dr. Stephen McNeil (Calgary)
Address
Suite 300, 1608 – 17th Avenue SW. Calgary, AB T2T 0E3
Phone
587-747-5615
Contacts
Dr. Stephen McNeil, Physical Medicine & Rehabilitation

DMRF Canada does not endorse any specialist or course of treatment and encourages you to consult your physician regarding your unique requirements.

Last update: Apr 2026