University of Calgary: Multidisciplinary Study of Adult-Onset Idiopathic Dystonia

Alberta Idiopathic Dystonia Research Project: To gather data on adult-onset cervical dystonia to improve therapies

This Study will be open until the end of 2026

You're invited to participate in a study investigating how brain circuits are wired and how they function in patients with adult-onset idiopathic dystonia

  1. Participants must have cervical dystonia and may have more than one type of dystonia.
  • Those with a DBS (deep brain stimulation) implant are not eligible to participate.
  •  It would be ideal (but not mandatory) to invite a friend to participate in the research project who does not have dystonia and is the same gender, age, and handedness.  
  1. The study requires participants to travel to the Calgary Movement Disorders Clinic.
  • You do not need to be an existing patient.
  • The tests (MRI scan) for the study have no expense to participants. Site parking is covered.
  • This study requires a one-time visit. People can register to attend from any region, but the Calgary clinic is the only location conducting the research. 
  1. Research will include a physical exam, questionnaires, and an MRI of the brain.
    • Time commitment will be approximately two (2) hours per participant.

Contact: marisol.ardilanino@ucalgary.ca or 403-210-9537

To participate, please fill out this form: https://research.ucalgary.ca/participate/multidisciplinary-study-adult-onset-idiopathic-dystonia-reb17-0054

Click here to view the poster

Last update: Aug 2026