Freedom to Move: Run, Walk and Wheel for Dystonia 2025

Help us expand our impact—share the opportunity with your networks and connect us with potential sponsors. 

A Partnership/Sponsorship Package is available to support your outreach to prospective partners. 

Freedom to Move: Run, Walk, and Wheel for Dystonia in June 2025  

Every June Canadians from coast-to-coast unite to raise awareness and critical funds for dystonia. To date, Freedom to Move has raised over $1 million to fund research, support programs, and advocacy efforts for people living with dystonia. We invite you to join us in a celebration of strength, community, and determination to make a positive impact for those living with dystonia. You can complete a walk, run, or wheel either virtually in your own community or join us in-person.
 
 

Toronto In-Person Event	National Virtual Event
Date: June 8th, 2025 Location: Downsview Park, Toronto Event Highlights: Choose from two routes (2 KM or 5 KM) and participate at your own pace Complimentary refreshments and more	Date: June 1st - 30th, 2025 Location: All Across Canada Event Highlights: Complete your run, walk or wheel any length in your own community at any time.

Corporate Team Discount: 

Available for in-person Toronto teams with 10+ participants. 

Please email us info@dystoniacanada.org for more information.

Thank You to Our Generous Sponsors and Partners!

Sponsors

Media Sponsor

Don't forget to share your progress with us on social media by using the hashtag #FreedomToMove!

Fundraising/Social Media Resources: 

Freedom to Move Video Contest: Lives in Motion 

What’s the Contest About?

Freedom to Move is more than just a fundraising initiative—it's a movement to raise awareness and bring dystonia to the forefront. This year, we challenge YOU to join the viral movement! Share a video of how you move—whether it's navigating life with dystonia or participating in an activity for the cause. Your video raises awareness and sparks understanding of this condition. Let’s move for dystonia—because everyone deserves the freedom to move.

Who Can Participate?

Everyone is welcome! Whether you have dystonia or are a friend, family member, or ally, we encourage YOU to take part. Note: While this contest is open to all, we encourage you to create your Freedom to Move fundraising page to maximize your impact and help support the cause.

What to Film?

Share a video that highlights how you move—whether it’s your personal story, an activity you enjoy, or your fundraising journey.

If you have dystonia or are sharing a loved one’s experience, please consider including the following:

What does life with dystonia look like without support?
How has your life changed with treatment and support?
Why is supporting dystonia awareness and DMRF Canada so important?
Keep it short—under 1 minute—but make it meaningful!

How to Submit?

Post your video on social media, use #FreedomToMove, and tag DMRF Canada. 
Challenge 3 people to join by tagging them!

This is your chance to make a real difference! Your story will help raise awareness, inspire others, and show what it’s like to live with dystonia. Whether you’re supporting loved ones or advocating for the newly diagnosed, your video can bring hope and drive critical support for research and programs. 

Incentives and Deadline

The video with the most shares and likes wins an exciting Prize Pack to celebrate their impact! Don’t wait—contest ends June 30! Share your video today and be part of this powerful movement to raise awareness and fund research. Your story could spark real change! 

*Note: Contest entries and eligibility are open to Canadian residents only.

Logo

• Freedom to Move - Logo (Eng) 
• Freedom to Move - Logo (Fr) 
• Freedom to Move Logo - Transparent Background (Eng) 
• Freedom to Move Logo - Transparent Background (Fr) 

Press Release

Coming Soon!

Fundraising Resources

• Freedom to Move Poster
• Partnerships Package 
• Sponsorship Package
• See the Impact Your Donation Can Have
• Voyez l'impact que votre don peut avoir (fr)
• Pledge Sheet (EN) 
• Pledge Sheet (FR) 

Sponsorship Resources

Sponsorship Package

Social Media

Facebook Banner

Social Media Image

Info Pack

• Understanding the Need for Dystonia Research.png (Eng) 
• Comprendre la nécessité de la recherche sur la dystonie_.png (Fr) 
• How long does it take to diagnose dystonia? (Eng)

Looking to Volunteer?

We’re currently seeking enthusiastic and dedicated volunteers to support Freedom to Move: Run, Walk and Wheel for Dystonia—our largest annual fundraising event! This year, the event is proudly co-hosted with Hydrocephalus Canada, bringing together two important causes for one incredible day.

📅 Event Details

• Date: Sunday, June 8, 2025

• Time: 8:30 AM – 12:30 PM (4 hours total)

• Location: Downsview Park – Orchard Pavilion
  (Corner of Keele St. and Downsview Park Blvd.)
  📍 (View Map) 

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🙌 Volunteer Role: Cheer Volunteer (Course Marshal)

As a Cheer Volunteer, you'll be stationed along the event route to cheer on participants, provide encouragement, and help create a supportive and fun atmosphere for everyone involved. This is a perfect opportunity to enjoy the outdoors, uplift others, and play a key role in making the event memorable.

🎯 We are currently in great need of course volunteers—your energy and enthusiasm can make all the difference!

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🎁 Volunteer Perks

• Complimentary refreshments during the event

• Confirmation letters for volunteer hours available upon request

• A fun, meaningful way to support people affected by dystonia and hydrocephalus

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📌 Important Information

• Volunteers must be at least 16 years old on the event day

  • If you’re under 18, a parent or guardian must sign the waiver on your behalf

• All volunteers are required to sign a waiver prior to the event

• Volunteers are responsible for their own transportation

  • Downsview Park is accessible via TTC and GO Transit

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💬 Ready to Volunteer or Have Questions?

Please contact Ingrid Exner at
📧 iexner@hydrocephalus.ca