Every other month DMRF Canada publishes Going Forward; our bi-monthly e-newsletter.
What's Making News
Yet another form of dystonia is called the myoclonus-dystonia (MD). In a separate program, supported by the Brown Family Foundation, several projects are underway or close to completion.
Several groups study functional changes in dystonia using neurophysiological approaches studying the entire human or animal brain. William Hutchison at Toronto Western Hospital (Canada) studies tremor, oscillations and synaptic plasticity in dystonia patients undergoing DBS.
DMRF Canada is committed to helping you live your best life with dystonia.
The next time you are visiting your movement disorder specialist, look out for the Dystonia Wellness Checklist. This is a short test that asks questions about your well being to identify areas where you may need additional support.
DMRF Canada was thrilled with the results of our recent 2019 neurotoxin survey. We had close to 300 responses from individuals from all over the country.
A very sincere thank you to anyone who took the time to answer this survey. This information will be used by DMRF Canada to help to improve the dystonia patient experience, and we appreciate your honesty and feedback.
Congratulations to the following Grand Prize Winners. These lucky individuals will receive a $500 gift card from VISA:
Tracy H from Dresden, ON
Sarah A from Winnipeg, MB