Nationwide Survey of Patients and Families: Access to Deep Brain Stimulation Surgery
Deep brain stimulation (DBS) is a surgical treatment available to some patients with certain motor disorders (Parkinson's Disease, essential tremor, primary dystonia) where a small device is implanted within the brain to help treat symptoms. A thorough assessment by a multidisciplinary team determines candidacy for this surgical treatment, as not all patients with these diagnoses would benefit from this therapy.
What is this survey about?
A group of researchers from McMaster University in Hamilton, Ontario (Dr. Melissa Lannon and Dr. Sunjay Sharma, Division of Neurosurgery), are conducting a research study to determine if patients across Canada have reasonable access to Deep brain stimulation (DBS) treatment and if any barriers exist to accessing this surgical treatment for motor disorders.
Who can complete the survey?
The survey is open only to those living in Canada who have been identified as someone diagnosed with or a family member or caregiver of someone diagnosed with Parkinson's Disease, essential tremor, or primary dystonia.
Where can I find the survey?
You can access the survey and additional information at
https://neurosurgery.mcmaster.ca/surveys/?s=TN48FRNXR3FT8P9P
You can also access the survey and additional information by scanning the QR code below with your mobile device.
It should only take you approximately 10 minutes to complete, and after completing the survey, you will have the option to enter your information for a chance to win a $25 gift card.
THE CLOSING DATE FOR COMPLETING THE SURVEY IS FRIDAY, 31ST MARCH 2023.
What do I do if I have any questions?
If you have any queries regarding this survey for any reason, please email the study coordinator, Amanda Martyniuk, at martynia@mcmaster.ca.
Thank you for your time and willingness to volunteer for the research study.