Dyfying Dystonia


Casey Kidson 2019

“Running on behalf of DMRF Canada has allowed me to ignite my inner passion and strength. It has allowed me to build a stronger connection with the Dystonia community, raise awareness and offer support and hope for those also diagnosed with dystonia."

Casey Kidson, DMRF Canada's Dystonia Ambassador, has had an incredible athletic journey. She continues to 'dyfy' dystonia by swimming, biking, and running towards many achievements both athletes and non-competitors alike will admire in awe.  On September 29th, 2019, she completed her first FULL Ironman in Chattanooga Tennessee, USA that consists of a 2.4-mile swim, 112-mile bike-ride, and a 26.2 mile run.

Casey has taken on more challenges and new roles!

  • In April 2024, Casey will be competing in her first Naturals Fitness Bodybuilding Competition in Vaughn, Ontario.
  • On August 18, 2024, Casey is competing at Ironman 70.3 in Louisville, Kentucky.
  • Casey and the Kingston Dystonia Support Group hosted a Freedom to Move for Dystonia walk event on July 16th at CaraCo Track.
  • Casey facilitates support group meetings in Kingston - click here to visit the page. She is also a member of the DMRF Canada Board of Directors.
  • In September 2020, Casey created a series of exercise videos aimed at the dystonia community! Watch here.
  • Casey joined the 2021 Do it For Dystonia Campaign by organizing Spinning for Dystonia - free virtual spin classes throughout February and March 2021. Click here to view Casey's Campaign on Canada Helps.
  • She completed her first Ultra Marathon 50k at the Virtual Ottawa Race Weekend! She fundraised with a Five for $5 campaign (a virtual high five with a $5 donation to DMRF Canada). You can check out Casey’s campaign here.
  • She has launched a podcast series titled Dyfy The Storm.
  • She is an ambassador for Chronically Badass
  • The Dyfying Dystonia Campaign will continue to raise awareness of and support for dystonia. Click here for a personal video message from Casey to learn more about the goals she hopes to achieve in order to encourage others in the dystonia community. 
  • Follow Casey on Facebook by clicking here to keep up with her training journey. You can also support her inspiring campaign to 'dyfy' dystonia by making a donation below.

Special thanks to The Davies Charitable Foundation for their support of Kingston initiatives.


Past awards and articles:
Casey Kidson Recognized as the 2017 Change-Maker by NHCC

To learn more about myoclonus-dystonia, click here.

Last update: Dec 2023