“Running on behalf of DMRF Canada has allowed me to ignite my inner passion and strength. It has allowed me to build a stronger connection with the Dystonia community, raise awareness and offer support and hope for those also diagnosed with dystonia."
Casey Kidson, DMRF Canada's Dystonia Ambassador, has had an incredible athletic journey. She continues to 'dyfy' dystonia by swimming, biking, and running towards many achievements both athletes and non-competitors alike will admire in awe. On September 29th, 2019, she completed her first FULL Ironman in Chattanooga Tennessee, USA that consists of a 2.4-mile swim, 112-mile bike-ride, and a 26.2 mile run.
Casey has taken on more challenges and new roles!
You can join her this year, 2026, at any of her upcoming races. She would love to meet you and believes it would be incredible to have support from members of the dystonia community at her various races.
- In May 2026, she will be competing in her very first HYROX race in Ottawa on May 17th, in the Adaptive Women’s Category. This event is especially meaningful, as she will be using it to raise awareness for dystonia and to share her experience as an adaptive athlete.
Event link: https://hyrox.com/event/hyrox-ottawa/ - She has also been selected as a 2026 AdaptX Ambassador, where she will support adaptive sport and accessibility in fitness. Through this platform, she will share content that highlights adaptive athletes while continuing to raise awareness for dystonia.
Program link: https://www.adaptx.org/2026ambassadors - She launched a new initiative called 100 Strong. This campaign is her way of connecting with 100 businesses to help support her 2026 Paratriathlon season, while continuing to use sport as a vehicle for advocacy, education, and awareness around dystonia. Click here to learn more.
- International Paratriathlon Classification: In July 2025, Casey received her official International Classification as a PTS4 Paratriathlete.
- First Para World Cup: Casey raced in her very first Paratriathlon World Cup in Magog, Quebec, proudly representing Canada on the international stage.
- Para National Open Race, Montreal: Casey competed in the Para National Open Race in Montreal and came away with a first-place finish
- High Performance Development Team: Casey is excited to be part of Canada’s High Performance Development Team for paratriathlon, where she is training with the long-term goal of representing Canada at the Paralympics.
- Off-Season Synchronized Skating: To complement her training, Casey has also returned to the ice, with her synchronized skating team during the triathlon off-season. This not only fuels her love of sport but also strengthens her athletic versatility and team connection.
- See Casey in the news: Whig Standard news Article
- In April 2024, Casey competed in her first Naturals Fitness Bodybuilding Competition in Vaughn, Ontario.
- On August 18, 2024, Casey competed at Ironman 70.3 in Louisville, Kentucky.
- Casey and the Kingston Dystonia Support Group hosted a Freedom to Move for Dystonia walk event on July 16th, 2023 at CaraCo Track.
- Casey facilitates support group meetings in Kingston - click here to visit the page. She is also a member of the DMRF Canada Board of Directors.
- In September 2020, Casey created a series of exercise videos aimed at the dystonia community! Watch here.
- Casey joined the 2021 Do it For Dystonia Campaign by organizing Spinning for Dystonia - free virtual spin classes throughout February and March 2021. Click here to view Casey's Campaign on Canada Helps.
- She completed her first Ultra Marathon 50k at the Virtual Ottawa Race Weekend! She fundraised with a Five for $5 campaign (a virtual high five with a $5 donation to DMRF Canada). You can check out Casey’s campaign here.
- She has launched a podcast series titled Dyfy The Storm.
- She is an ambassador for Chronically Badass.
- The Dyfying Dystonia Campaign will continue to raise awareness of and support for dystonia. Click here for a personal video message from Casey to learn more about the goals she hopes to achieve in order to encourage others in the dystonia community.
- Follow Casey on Facebook by clicking here to keep up with her training journey. You can also support her inspiring campaign to 'dyfy' dystonia by making a donation below.
Special thanks to The Davies Charitable Foundation for their support of Kingston initiatives.
Past awards and articles:
Casey Kidson Recognized as the 2017 Change-Maker by NHCC
To learn more about myoclonus-dystonia, click here.
