Guide for Teens with Dystonia


“I am thrilled that the DMRF Canada gave me the opportunity to participate in reviewing this guidebook. As a grade 12 student living with Generalized Dystonia, I can relevantly connect many aspects of this information back to my own school experience. The one thing that I wish I had realized sooner in my journey is that when you truly accept your diagnosis on a personal level, every other aspect of living with dystonia becomes easier to handle.” - Sarah Anderson, Teen Ambassador for DMRF Canada*.

Download the Teen Guide Here

Get the online version here.

If you would like a hard copy of this guide, kindly send us your request with a mailing address at or call 1.800.361.8061.

Our thanks to the George Lunan Foundation for their support of this initiative.

Connect with other teens who have dystonia here. Learn how here. 

Additional Links:

The Dystonia Guide for Teens

Charities for Children and Teens who have Dystonia

Learn more about IEP (Individual Education Plan) Programs

Council of Canadians with Disabilities: CCD is a national human rights organization of people with disabilities working for an accessible and inclusive Canada. 


Last update: Mar 2020