Tannenbaum $20 million gift to Montreal Neurological Institute

Prime Minister Justin Trudeau was present on December 16, 2016 at the Montreal Neurological Institute and Hospital  for the announcement of the donation of $20 million by the Larry and Judy Tanenbaum family. This gift, which McGill University calls “transformative”,  will help to establish the Tanenbaum Open Science Institute, to facilitate the sharing of neuroscience findings worldwide to accelerate the discovery of leading edge therapeutics to treat neurological conditions.

Last update: Oct 2022

Defending Parapan champ with dystonia Ian Kent serves up one table tennis win with another

 Toronto Star - August 4, 2016 - Kerry Gillespie.  Ian Kent who has dystonia, has been competitive from the moment he and his older brother started playing in the basement as kids in the 1970s through to more recent years when, despite his disability, he continued to beat everyone in Nova Scotia, including his adult sons, in able-bodied table tennis.  More

Last update: Jan 2016

Interview with Brenda Lewis Support Leader Edmonton


Published on Mar 18, 2015

In Edmonton, AMI's Keith Gillard visits author Brenda Currey Lewis who was diagnosed with generalized dystonia when she was seven years old. Now as an adult, she's written a book about what it was like to grow up with an unusual disability. 


 Watch this You Tube video with Brenda Lewis discussing her journey with dystonia. 

Last update: Jan 2016

Using the Brain to retrain body after Dystonia

 Wency Leung-The Globe and Mail. Joaquin Farias has spent the past two decades trying to understand dystonia, a confounding and sometimes debilitating syndrome believed to be the third-most-common neurological movement disorder, after essential tremor and Parkinson’s disease.


Last update: Jan 2016

Paralympics the Goal for DMRF Canada Youth Ambassador Spencer Clough

Oakville Beaver - Jon Kuiperij - Even when he was at a competitive disadvantage, Spencer Clough always held his own against other snowboarders. Now that he’s exclusively racing against fellow adaptive athletes, the 17-year-old St. Thomas Aquinas high school student is quickly realizing the sport might provide him with much more than an occasional medal. It may even take him to the Paralympics. More

Last update: Jan 2016

The Inside Story honoured by Canadian Medical Association

A CityNews report about a teen who had brain surgery to treat a neurological disorder is being honoured by the Canadian Medical Association (CMA).

Reporter Avery Haines and editor Shayla Scott received a special mention for the CMA’s Media Awards for Health for an August 2012 story on Mathew Sheppard, a 13-year-old with myoclonus-dystonia. More

Last update: Jan 2016