Stefanie Ince, Executive Director of the Dystonia Medical Research Foundation was on hand to speak to 680 News about the challenges associated with living with dystonia – and why funding research to find a cure is so critical.  As the largest radio newsroom in Canada, 680 News averages 1 million listeners across the GTA every 10 minutes.   

Hear Stefanie’s interview here:

Clip 1

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Those in attendance at September’s Kelowna Okanagan Dystonia Support Group meeting included (from left) N

English Français

DMRF Canada is pleased to announce the launch of an annual one-year clinical fellowship to support the training of exceptionally qualified physicians in preparation for their clinical career in movement disorders with a focus on dystonia and a special competence in use of botulinum toxins. In 2017, this program will support fellows through a grant from Allergan.

English Français

We are thrilled to announce we recently received the much-needed funding to launch a support program specifically for parents of children and teens who have dystonia, as well as the children and teens who are affected by the disorder.

According to the research, the childhood-onset motor disorder DYT6 dystonia is caused by loss-of-function mutations in the transcription factor THAP1, but the neurodevelopmental processes in which THAP1 participates are unknown.