In 2012 the DMRF Canada annual Freedom to Move for Dystonia 5 km Walk/Run was named “Chuck’s Run for Dystonia” after Charles (Chuck) Saundercook who was diagnosed in 1972. Chuck was diagnosed with generalized dystonia at the age of 12. In 1978 Chuck became one of the first Canadians to receive deep brain stimulation. He improved with the procedure but developed pneumonia and in his weakened state, died at age 16. In his final chapter, Chuck donated his body and brain to help others in furthering dystonia research. Since then the entire Saundercook family have been enduring supporters of dystonia awareness and research.
You can honor Chuck by participating in the annual Chuck’s Run event.