In 2012 the DMRF Canada annual Freedom to Move for Dystonia 5 km Walk/Run was named “Chuck’s Run for Dystonia” after Charles (Chuck) Saundercook who was diagnosed in 1973. Chuck was diagnosed with generalized dystonia at the age of 12. In 1977, Chuck became one of the first Canadians to receive deep brain stimulation. He improved with the procedure but developed pneumonia and in his weakened state, died in1978, at age 16. In his final chapter, Chuck donated his body and brain to help others in furthering dystonia research. Since then the entire Saundercook family have been enduring supporters of dystonia awareness and research. Click here for a complete history of Chuck's Run.