Dystonia Canada News

WENCY LEUNG - The Globe & Mail - Kylee Taylor was distraught. For nearly two years, her teenage son, Kieran Porter, had seen multiple doctors and undergone countless medical tests, but none provided an answer for his alarming and mysterious illness.

By: Heidi Ulrichsen - Sudbury Northern Life Staff - For most of his life, Dwayne Backer has lived with dystonia. For him, that means debilitating muscle spasms and poor fine motor control, preventing him from performing day-to-day tasks such as shaving his own face or writing a grocery list. More

TORONTO - Matthew Sheppard drew attention to dystonia Thursday by offering to help Mayor Rob Ford in his workout regime.

The 13-year-old who suffers from myoclonus dystonia came to City Hall with his mom Cathy and former city councillor Bill Saundercook. Together they invited Ford to take part in the Freedom to Move/Chuck’s 5 km Run/Walk for Dystonia taking place in High Park on June 3. More

A trailblazing Toronto family and their courageous brother are honoured by the Dystonia Medical Research Foundation Canada. To honour a courageous individual and his trailblazing Toronto family, the Dystonia Medical Research Foundation Canada (DMRF Canada) announced today its 2012 Freedom to Move 5 km Run/Walk will be called “Chuck’s Run” in memory of Chuck Saundercook who died from Dystonia-related complications in 1978 at the age of 17.

JAMES R. OESTREICH - New York Times - Just because you’re a hypochondriac, to paraphrase Joseph Heller’s wry comment on paranoia, doesn’t mean you aren’t sick. And the brilliant Canadian pianist Glenn Gould was, in a phrase uttered at a medical conference over the weekend, “a world-class hypochondriac.” He was also a perfectionist, easily frustrated.

Researchers Identify Gene Associated with Primary Cervical Dystonia

The Globe and Mail - Adriana Barton - Matthew Sheppard can spend hours playing the video gam Minecraft, but he has trouble pouring water into a glass.  Like other 13 year old boys, he loves hurtling through nature on an ATV.  But when a waitress asks for his order,he blinks uncontrollably and shakes all over.  Matthew has dystonia, a movement disorder that casused involuntary muscle contractions and spasms. More

By Matt Day, The Chronicle-Fran Porter came to Dunnville five years ago and always heard about the Dystonia Buskerfest which was held each year in the Sobeys foyer, but she never had the opportunity to go. More

Matt Day, The Chronicle - After years of setting up shop inside of the Dunnville Sobeys for a day of live music, Laurie Bell is giving up the annual October Buskerfest event which continually raise

By Stephen Petrick/Napanee Guide, At first they noticed his eyes blinking more. Next his facial features started to sag. In time he couldn't move without staggering. Now he slurs his words when he speaks. Deseronto couple Beth Fisher and Michael Stevens say their lives have become extraordinarily more challenging ever since Stevens began showing symptoms of Dystonia about three and a half years ago. More